Some patients report that their doctors ask for information about ME/CFS. This list helps fill that request. It also includes information for ME/CFS patients who want to understand the illness. Keep in mind that there are no high-probability treatments for ME/CFS. All we have are treatments that help some people. I've attached it here as a PDF. It's still a work in progress.
Please be aware that some of us never mention ME/CFS to our doctors. We have found that once we do that, the doctor no longer takes our individual symptoms seriously, and they tend to see us as fatigued people. So we describe the symptoms without mentioning ME/CFS.
reading list updated Dec. 8, 2018
Please be aware that some of us never mention ME/CFS to our doctors. We have found that once we do that, the doctor no longer takes our individual symptoms seriously, and they tend to see us as fatigued people. So we describe the symptoms without mentioning ME/CFS.
reading list updated Dec. 8, 2018