So last year I had enough energy to try this whole AUTOIMMUNE PROTOCOL (AIP) eating plan.
Spring comes, I talk to a nutritionist and it appears I might have an oxalate issue. Spend some time reading up on that and it is not pretty. But, I DO have mystery kidney stones and I do have the genetic variant associated with oxalate processing problems so it's possible. (Of course there's not good actual TESTS for this, apparently, so you just have to try and see.)
I slowly begin to reduce oxalates. (Actually the nutritionist has me start mixing up a mineral water solution and I think that really helps too. AT FIRST.)
A bit later I talk to the nutritionist again and it seems I might have a sulfur intolerance issue as well. I quit taking NAC, Allicin, and liposomal glutathione and suddenly feel a LOT better. AT FIRST.
And just to make things more fun, SIBO is back.
The oxalate people say, Ehh, SIBO- Quit taking so many rounds of herbal probiotics it kills off your gut flora.
The ND says .... Hey, SIBO- More rounds of herbal probiotics!!
For low oxalate, the green vegetables you can eat... well let's say there's a lot of crucifers. Which are high in sulfur. Suddenly my long-standing lunch (protein+ homemade coleslaw, heavy on red and green cabbage) looks 100% indigestible to me. And my dinners have been Broccoli Cauliflower Bok choi. Sulfur party!
I feel completely at a loss. Am I destroying whatever shreds of gut flora I have with yet another round of oregano?
And, If I'm having trouble with sulfur AND oxalates what the heck is there to eat?
(actually there is a handout on at least one of these things. https://drruscio.com/low-sulfut-diet/ )
Oh by the way I have histamine issues too OF COURSE. The venn overlap areas get smaller an smaller..
(I trust that anyone who has an oxalate issue has already found the bewildering maze of low ox information at "trying low oxalates" on fb)
This is all coming to a head today because I thought I would get started on the SIBO protocol and take some Allicin last night, for the first time in months, which in the past I've generally tolerated okay.
Today = full inflammation and incapacity, who-eee! So yeah sulfur intolerance seems very likely.
You know that famous Rumi quote, Somewhere there is a field beyond right and wrong, you will find me there...
Somewhere there is a morass of confusing and contradictory health guidance, kind of like a big deep mud puddle that is also somehow a sticker bush... , you will find ME there.
(edit: when I wrote this I didn't realize how applicable that statement is to ME/CFS as well. An inadvertent and unfunny pun.) (hey I try to keep aspirations LOW very very LOW.)
Just venting. I know I need some help with this and have some appointments coming up next month. Just don't know what to do in the meantime.
On the upside:
- It rained a little last night for the first time in maybe 60 days or more.
- My multiple risk factor dad was able to get CV #3 the other day- Because his DR was sick and tired of throwing out doses when they open a vial. Also he was at 8 months since #2, he got in early.
- I just made a big batch of soup full of lots of sulfury things (game meat, bok choi, onions)... the upside is I have a freezer so I can freeze it for later when maybe I can process sulfur a little better.
- Oura is still generally helpful, although it doesn't pick up on inflammation issues and thinks I should be out walking somewhere about now
Spring comes, I talk to a nutritionist and it appears I might have an oxalate issue. Spend some time reading up on that and it is not pretty. But, I DO have mystery kidney stones and I do have the genetic variant associated with oxalate processing problems so it's possible. (Of course there's not good actual TESTS for this, apparently, so you just have to try and see.)
I slowly begin to reduce oxalates. (Actually the nutritionist has me start mixing up a mineral water solution and I think that really helps too. AT FIRST.)
A bit later I talk to the nutritionist again and it seems I might have a sulfur intolerance issue as well. I quit taking NAC, Allicin, and liposomal glutathione and suddenly feel a LOT better. AT FIRST.
And just to make things more fun, SIBO is back.
The oxalate people say, Ehh, SIBO- Quit taking so many rounds of herbal probiotics it kills off your gut flora.
The ND says .... Hey, SIBO- More rounds of herbal probiotics!!
For low oxalate, the green vegetables you can eat... well let's say there's a lot of crucifers. Which are high in sulfur. Suddenly my long-standing lunch (protein+ homemade coleslaw, heavy on red and green cabbage) looks 100% indigestible to me. And my dinners have been Broccoli Cauliflower Bok choi. Sulfur party!
I feel completely at a loss. Am I destroying whatever shreds of gut flora I have with yet another round of oregano?
And, If I'm having trouble with sulfur AND oxalates what the heck is there to eat?
(actually there is a handout on at least one of these things. https://drruscio.com/low-sulfut-diet/ )
Oh by the way I have histamine issues too OF COURSE. The venn overlap areas get smaller an smaller..
(I trust that anyone who has an oxalate issue has already found the bewildering maze of low ox information at "trying low oxalates" on fb)
This is all coming to a head today because I thought I would get started on the SIBO protocol and take some Allicin last night, for the first time in months, which in the past I've generally tolerated okay.
Today = full inflammation and incapacity, who-eee! So yeah sulfur intolerance seems very likely.
You know that famous Rumi quote, Somewhere there is a field beyond right and wrong, you will find me there...
Somewhere there is a morass of confusing and contradictory health guidance, kind of like a big deep mud puddle that is also somehow a sticker bush... , you will find ME there.
(edit: when I wrote this I didn't realize how applicable that statement is to ME/CFS as well. An inadvertent and unfunny pun.) (hey I try to keep aspirations LOW very very LOW.)
Just venting. I know I need some help with this and have some appointments coming up next month. Just don't know what to do in the meantime.
On the upside:
- It rained a little last night for the first time in maybe 60 days or more.
- My multiple risk factor dad was able to get CV #3 the other day- Because his DR was sick and tired of throwing out doses when they open a vial. Also he was at 8 months since #2, he got in early.
- I just made a big batch of soup full of lots of sulfury things (game meat, bok choi, onions)... the upside is I have a freezer so I can freeze it for later when maybe I can process sulfur a little better.
- Oura is still generally helpful, although it doesn't pick up on inflammation issues and thinks I should be out walking somewhere about now
