I have written out a full list of the symptoms and sensations I experience, what for, I'm not entirely sure, but I thought it might be helpful if I can get anyone to read it and consider me seriously. Heck, I'll thrust it at anyone! It's constantly being updated as new sensations arise and surprise, and I've probably forgotten something. Thought I would save it here also.
SYMPTOMS SINCE OCT 2011, WORSENED/PROGRESSED SINCE 2017
UPDATED APRIL 2019
- Chronic acid reflux feeling like fireworks, burning, painful, sickly. Have cut out all acidic foods and drinks. Plain water can make burning acid.
- Acid can get so overwhelming I have to stop what I'm doing and 'ride it out, wait,' for however long it takes, even up to 2 hours.
- Feeling of something stuck in throat, food refluxing back up to throat as I'm eating.
- Drinking water makes stomach/esophagus feel full, as though it expands the area like a balloon or hot water bottle, so only have a few gulps. Always dehydrated and thirsty as a consequence. Throat often closes due to dehydration.
- Cannot lean back, bend, or lie down due to reflux. Cannot lie on left side after going to bed. Leaning back causes immediate reflux/burning acid.
- Gut pain, can be triggered by foods, sometimes shouting out and crying from pain if accidentally eaten a trigger food.
- Constipation, sometimes piles. Stools often pale, especially after eating trigger foods and shouting from the pain. Sometimes blood in stools.
- Fuzzy head, light-headedness, vertigo, feeling of head suddenly 'dropping', head zaps, sudden vibrations through head felt in teeth, dizziness. 'Drops' sometimes create 'electricity' running through chest and fingers.
- Muscle jolts/spasms, particularly in the chest. Chest jolts may be due to reflux/wind: heart often feels like it is jumping or 'somersaulting' when laying down, making my chest and other muscles jolt. Have woken up in the night from multiple jolts in my sleep as heart somersaulted. Jolts sometimes creating 'electricity' through my chest, arms and fingers. Have felt electricity in other parts of the body such as shoulder.
- Muscle pain, sore points that sometimes 'scream' if lightly pressed, severe muscle weakness; cannot lift many objects, carry trays, reaching over can be a struggle. Stiffness and aches on waking up in the morning, as though I was battered in the night. Cannot focus in the morning, try to focus on an object to 'wake up.' Sometimes mute, unable to speak and 'zombie-like' in the mornings.
- Tiredness, sometimes fatigue, occasionally so bad that I cry and cannot wait to go to bed.
- Sensitivity to noise, light, heat, and the sun (sun creates fuzzy head and feeling of light-headedness, dehydration)
- Crashing the day after going out or seeing friends at home: crashing involves worsening of reflux, IBS, head symptoms, muscle pain and fatigue - sometimes being mute, not speaking if the previous day was particularly busy.
- Acne, inflamed, all over face and other areas of body; feels painful, uncomfortable, like something is crawling over skin. Only antibiotics help control it.
- Very dry, flaky skin; cracked, ridged, and peeling nails.
- Nasal congestion, like having a year-round mild cold.
- Malaise: indescribable feeling of illness, involving acid reflux, muscle pain, head symptoms, weakness, flare-up of general symptoms, severe sickness.
- Symptoms worsening with hormones at certain times of the month.
- Hot flashes, sometimes so bad I have to run to sit by a fan even in winter, palpitations, poor balance and coordination, inability to concentrate.
SYMPTOMS SINCE OCT 2011, WORSENED/PROGRESSED SINCE 2017
UPDATED APRIL 2019
- Chronic acid reflux feeling like fireworks, burning, painful, sickly. Have cut out all acidic foods and drinks. Plain water can make burning acid.
- Acid can get so overwhelming I have to stop what I'm doing and 'ride it out, wait,' for however long it takes, even up to 2 hours.
- Feeling of something stuck in throat, food refluxing back up to throat as I'm eating.
- Drinking water makes stomach/esophagus feel full, as though it expands the area like a balloon or hot water bottle, so only have a few gulps. Always dehydrated and thirsty as a consequence. Throat often closes due to dehydration.
- Cannot lean back, bend, or lie down due to reflux. Cannot lie on left side after going to bed. Leaning back causes immediate reflux/burning acid.
- Gut pain, can be triggered by foods, sometimes shouting out and crying from pain if accidentally eaten a trigger food.
- Constipation, sometimes piles. Stools often pale, especially after eating trigger foods and shouting from the pain. Sometimes blood in stools.
- Fuzzy head, light-headedness, vertigo, feeling of head suddenly 'dropping', head zaps, sudden vibrations through head felt in teeth, dizziness. 'Drops' sometimes create 'electricity' running through chest and fingers.
- Muscle jolts/spasms, particularly in the chest. Chest jolts may be due to reflux/wind: heart often feels like it is jumping or 'somersaulting' when laying down, making my chest and other muscles jolt. Have woken up in the night from multiple jolts in my sleep as heart somersaulted. Jolts sometimes creating 'electricity' through my chest, arms and fingers. Have felt electricity in other parts of the body such as shoulder.
- Muscle pain, sore points that sometimes 'scream' if lightly pressed, severe muscle weakness; cannot lift many objects, carry trays, reaching over can be a struggle. Stiffness and aches on waking up in the morning, as though I was battered in the night. Cannot focus in the morning, try to focus on an object to 'wake up.' Sometimes mute, unable to speak and 'zombie-like' in the mornings.
- Tiredness, sometimes fatigue, occasionally so bad that I cry and cannot wait to go to bed.
- Sensitivity to noise, light, heat, and the sun (sun creates fuzzy head and feeling of light-headedness, dehydration)
- Crashing the day after going out or seeing friends at home: crashing involves worsening of reflux, IBS, head symptoms, muscle pain and fatigue - sometimes being mute, not speaking if the previous day was particularly busy.
- Acne, inflamed, all over face and other areas of body; feels painful, uncomfortable, like something is crawling over skin. Only antibiotics help control it.
- Very dry, flaky skin; cracked, ridged, and peeling nails.
- Nasal congestion, like having a year-round mild cold.
- Malaise: indescribable feeling of illness, involving acid reflux, muscle pain, head symptoms, weakness, flare-up of general symptoms, severe sickness.
- Symptoms worsening with hormones at certain times of the month.
- Hot flashes, sometimes so bad I have to run to sit by a fan even in winter, palpitations, poor balance and coordination, inability to concentrate.