Ways I am doing better:
When I was feeling the worse, I started to take supplements regularly. I've stopped them all, and after stopping them I think that strange headache has lessened / gone away. Either d-ribose or cq10. Only taking the beta blocker and fiber now.
The only other thing is I have a lot of lipomas on my body - and found a much bigger bump than usual on my thigh. My Dr said it was still a lipoma - I'm not convinced! So my worry had shifted to that, which might help.
I've never had a diagnosis or anything - and have never had anything really severe. We'll see. I'm hoping a long work vacation coming up over the holidays will help even more.
- Body aches less overall. I have some really good days where I don't notice much. Contrast that to where it felt driving to work was hard because my leg would ache from keeping it on the accelerator.
- HR better overall. I try to take 1/4 ( 12.5 mg) metropolol a day, which doesn't seem like much. Right now I am sitting at computer with HR in 50s, walking only jumped me up to into the 70/80s just now.
- Standing still / walking much easier. At work we have these 10-15 minute meetings while standing. They would be really painful, I'd have to sway / fidget quite a bit as it was hard. I can do much better at standing still now Walking is easier as well.
- I am, riding my ( pedal assist electric) bike to work again. It is about 9 miles round trip, so close, but today my HR reading for the trip was similar to pre-illness. I am sure I am not exerting as much energy as I used to, but still a good sign.
- I'm not sleeping that much better. I still tend to wake up after 6 hours of sleep or so and really can have a hard time going back to sleep. I am probably falling asleep better though ( melatonin / Benadryl).
- Drinking beer again with much less impact. Not a good thing I know! But much less impact..
- It feels like my body has energy sometimes?
- Many days I'd feel worse as the day goes on, seems like that happens a lot less now.
I think a turning point was one morning when I woke up with a bit more energy - went to work - felt hot and was sweating / uncomfortable enough I went outside to work on a 50 degree day - and was still sweating for a bit. Didn't last more than an hour but I think since then I've been doing better overall? Might not be related, but I felt quite a bit better the rest of the day and in particular that weekend. ( went downhill a bit since then - but overall better).
I did try to go on a low carb diet early this week my HR seemed to jump a ton and felt a fair amount worse, so stopped that quick.
When I was feeling the worse, I started to take supplements regularly. I've stopped them all, and after stopping them I think that strange headache has lessened / gone away. Either d-ribose or cq10. Only taking the beta blocker and fiber now.
The only other thing is I have a lot of lipomas on my body - and found a much bigger bump than usual on my thigh. My Dr said it was still a lipoma - I'm not convinced! So my worry had shifted to that, which might help.
I've never had a diagnosis or anything - and have never had anything really severe. We'll see. I'm hoping a long work vacation coming up over the holidays will help even more.
