If you would have asked me, I would say I have mild cFs. But I think we understimate the little compromise we do day to day to adapt to CFS.
I went to a classical music concert ( trying to behave as a normal person) first thing, I was like wow I used to feel so miserable just by being sitting here. And I was impressed how I sit in so many events in the lasts years and wonder how did I make it? Secondly, I saw those women stand and sing for 2h ( while wearing hills) and all I thinking, something as simple as wearing hills would be a dream, let alone stand for 2h, let alone standing on hills for 2h.
I realized all the little things I cannot do, and how fragile my state is. That was 3 weeks ago and I am still crashed. Just to be a good friend and have a date w a friend. I tried to be normal and the payback is a bitch.
So this is hard for me to
Think there is such a thing as mild.
I am also struggling at work, I had a very schedule live and a huge project came my way and my routine has gone to heck.
The problem is I felt I was doing well becuase I was on a unrealistic self managed routine where I could rest in between and work from home mostly.
The worst is IBS at work is do darn embarrassing. There is not a elegant way to run to a bathroom when you are in the
Middle of some important issue at work.
Also, I had to make a presentation: standing, raising my arms above my head pointing at the board, I was blacking out, I thoguht I was faking it well but plp noticed becuase at the end a person came to talk to me about heart disease.
I have been struggling also driving, I passed out while driving fortunately I was at a light and blackout a few more times before I reached the safety of my home. I had skipped breakfast becuase was stuck in meetings.
Anyways when I am thrown on the reality of live, w not safety net, I fail miserably.
I went to a classical music concert ( trying to behave as a normal person) first thing, I was like wow I used to feel so miserable just by being sitting here. And I was impressed how I sit in so many events in the lasts years and wonder how did I make it? Secondly, I saw those women stand and sing for 2h ( while wearing hills) and all I thinking, something as simple as wearing hills would be a dream, let alone stand for 2h, let alone standing on hills for 2h.
I realized all the little things I cannot do, and how fragile my state is. That was 3 weeks ago and I am still crashed. Just to be a good friend and have a date w a friend. I tried to be normal and the payback is a bitch.
So this is hard for me to
Think there is such a thing as mild.
I am also struggling at work, I had a very schedule live and a huge project came my way and my routine has gone to heck.
The problem is I felt I was doing well becuase I was on a unrealistic self managed routine where I could rest in between and work from home mostly.
The worst is IBS at work is do darn embarrassing. There is not a elegant way to run to a bathroom when you are in the
Middle of some important issue at work.
Also, I had to make a presentation: standing, raising my arms above my head pointing at the board, I was blacking out, I thoguht I was faking it well but plp noticed becuase at the end a person came to talk to me about heart disease.
I have been struggling also driving, I passed out while driving fortunately I was at a light and blackout a few more times before I reached the safety of my home. I had skipped breakfast becuase was stuck in meetings.
Anyways when I am thrown on the reality of live, w not safety net, I fail miserably.
