Everything is still going pretty well. I'm doing 4ME and the VSL#3 probiotics daily, and the creon 150 digestive enzymes with every meal. HydroxoB12 is twice per week, and still hurts like a bastard every time 
Still not taking Glucagon, and will probably stop the liposomal Vitamin C since the soy in it still makes me swell up every time. I'll go back to a normal buffered vitamin C instead.
Getting the refills was pretty easy. I had a prescription for two months, so the pharmacist did approximately a two-week supply at first, to make sure I was tolerating every thing and would continue taking it. So they've given us the remaining 6-week supply now, though the B12 isn't in yet. Hopefully it is by Tuesday, because that's when I should be torturing myself with it again
I also noticed that my insurance is covering the creon 150 digestive enzymes automatically, even though the prescription is from a foreign doctor. The pharmacy items which aren't being covered are ones either not available at all in the Netherlands (high dose B12 injections) or not covered by the health insurance in general (the probiotics).
I've also got big boxes of syringes and two types of needles now - 100 of each, which is more than enough. I just need more needles for the intramuscular B12 injections. I also ordered another month's worth of the 4ME, since I'm tolerating it and it seems to be helping. That's expensive (270 euros) and they don't notify me when it gets shipped, but it's arrived without any problems and pretty fast both times - within a week of placing the order.
The 4ME isn't causing much of a reaction anymore. It still stings a bit going on, but doesn't get all red, inflamed, and hot. Just slightly warm and pink and sore now. I think the 4ME might be helping quite a bit with something. I've had less swelling in general, and my swollen right tonsil has been much less swollen lately. The naughty tonsil no longer has rotting stuff getting stuck in it which needs to be cleaned out every couple days My fiance has also noticed huge improvements in my cognitive functioning, though that mostly goes away if I crash.
I'm slowly making progress getting some disability-related things taken care of - a wheelchair and a disabled parking permit are both in the works. I've posted more about that in the relevant subforum.
Still not taking Glucagon, and will probably stop the liposomal Vitamin C since the soy in it still makes me swell up every time. I'll go back to a normal buffered vitamin C instead.Getting the refills was pretty easy. I had a prescription for two months, so the pharmacist did approximately a two-week supply at first, to make sure I was tolerating every thing and would continue taking it. So they've given us the remaining 6-week supply now, though the B12 isn't in yet. Hopefully it is by Tuesday, because that's when I should be torturing myself with it again
I also noticed that my insurance is covering the creon 150 digestive enzymes automatically, even though the prescription is from a foreign doctor. The pharmacy items which aren't being covered are ones either not available at all in the Netherlands (high dose B12 injections) or not covered by the health insurance in general (the probiotics).
I've also got big boxes of syringes and two types of needles now - 100 of each, which is more than enough. I just need more needles for the intramuscular B12 injections. I also ordered another month's worth of the 4ME, since I'm tolerating it and it seems to be helping. That's expensive (270 euros) and they don't notify me when it gets shipped, but it's arrived without any problems and pretty fast both times - within a week of placing the order.
The 4ME isn't causing much of a reaction anymore. It still stings a bit going on, but doesn't get all red, inflamed, and hot. Just slightly warm and pink and sore now. I think the 4ME might be helping quite a bit with something. I've had less swelling in general, and my swollen right tonsil has been much less swollen lately. The naughty tonsil no longer has rotting stuff getting stuck in it which needs to be cleaned out every couple days
My fiance has also noticed huge improvements in my cognitive functioning, though that mostly goes away if I crash.I'm slowly making progress getting some disability-related things taken care of - a wheelchair and a disabled parking permit are both in the works. I've posted more about that in the relevant subforum.
