Hi. I haven't updated in over a week, but that's because not much to say. Almost at 4 weeks on 1800 valcyte per day. Had a couple days where I was feeling better, then had some physically and emotionally stressful stuff going on and my sleep got fucked up again (I had worked out a complex, delicate routine of layering sleep meds, relaxation techniques, etc that had been going pretty well) and so I've felt pretty sick for the past several days, but I don't think i can blame that on valcyte.
Big problem right now is muscle and/ or joint pain keeping me awake. Had been taking advil at bedtime which is sometimes enough and sometimes not. Thinking of asking my doctor for LDN, but having trouble wading through the why's and wherefores of taking/not taking. Can't seem to see any good reason NOT to give it a try, but I may be missing something. Need something for body pain at night and bad headaches during the day, but he always seems to talk me out of trying opiates. I know doctors can get in big trouble regarding pain meds, so I see where he is coming from.
So, long story short, nothing really new.
Big problem right now is muscle and/ or joint pain keeping me awake. Had been taking advil at bedtime which is sometimes enough and sometimes not. Thinking of asking my doctor for LDN, but having trouble wading through the why's and wherefores of taking/not taking. Can't seem to see any good reason NOT to give it a try, but I may be missing something. Need something for body pain at night and bad headaches during the day, but he always seems to talk me out of trying opiates. I know doctors can get in big trouble regarding pain meds, so I see where he is coming from.
So, long story short, nothing really new.