So I am not around as much because I am doing so much more this days.
Exercise: I walk little here and there but not formal exercise yet.
Sleep: Was doing great but starting waking up like 3 times again, I am backing off benzos or because of the cpap mask leaking not sure the reason.
My white tongue is much better, barely noticeable. Diarrhea comes sometimes but is mostly gone. More energy to do daily family activities. I found myself sharing and going out more.
Overall my base functional number has gone up. So physically I am doing better, emotionally I am dealing w hope but at the same time afraid this is as good as its going to get, and all the emotional ups and down that the good days or bad days bring.
I am still dealing w MY HEAD BUZZ or whatever it is, is driving me crazy. If I am not lost to CFS I will be to this head thing. OI is better but still struggling with been vertical for long periods of time. Sleep is better but it is still an issue.
If you ask me, I am CFS controlled. But that I still have the same struggles and issues to deal with on day to day basis, I am not still to a point where I can say this is manageable for the rest of my life, I just want to get to a point where the suffering is tolerable.
Exercise: I walk little here and there but not formal exercise yet.
Sleep: Was doing great but starting waking up like 3 times again, I am backing off benzos or because of the cpap mask leaking not sure the reason.
My white tongue is much better, barely noticeable. Diarrhea comes sometimes but is mostly gone. More energy to do daily family activities. I found myself sharing and going out more.
Overall my base functional number has gone up. So physically I am doing better, emotionally I am dealing w hope but at the same time afraid this is as good as its going to get, and all the emotional ups and down that the good days or bad days bring.
I am still dealing w MY HEAD BUZZ or whatever it is, is driving me crazy. If I am not lost to CFS I will be to this head thing. OI is better but still struggling with been vertical for long periods of time. Sleep is better but it is still an issue.
If you ask me, I am CFS controlled. But that I still have the same struggles and issues to deal with on day to day basis, I am not still to a point where I can say this is manageable for the rest of my life, I just want to get to a point where the suffering is tolerable.
