I've decided to blog here for therapy :scared: Thank goodness I know I'm amongst friends
Bit of background...long term ME/CFS, FM, MCS & degenerative disc disease. More recently flares of severe cervical spine pain thought to be sero-negative spondyloarthropathy ?Psoriatic arthritis.
Recent onset severe dry eyes. Recent more severe MCS. Constant thirst & feelings of dehydration. All over muscle tenderness. Dry, tight sore muscles in upper back. Burning sensation in legs.
Today I managed to force myself to go on an outing into the city to see an exhibition of the history of world maps including that of Antartica, followed by a picnic in Sydney's Royal Botanic Gardens.
I enjoyed my day but am exhausted! I experienced what must be orthostatic intolerance in a big way as I was walking around the exhibition. Also found myself unable to fully read all the texts next to the displays. After all...I've been bedridden for 6 mths & housebound for another 6 mths...
I feel nauseous & dehydrated every morning. Had a couple of painful bouts of reflux oesophagitis, especially as I was trying to lie down to sleep. Have had a red throat recently...but it's not sore. Had a Chinese Massage & discovered the all over muscle tenderness, with worsening fatigue & weakness.
Decided to present to my local hospital (across the road from massage therapist).
Male Triage nurse said "Nausea is not considered an emergency. I think you should go to a medical centre". I said " I'm NOT leaving...I want to see a doctor!" with that he gave me the paperwork to fill & walked away.
I waited ages then fortunately got to see a really nice & compassionate, experienced lady doctor. Told her my "complex" story. She listened & gave me some reasonable advice & agreed to do some basic blood tests...FBC, UEC, LFT & BSL. I told her my ALP is always slightly elevated & no-one knows why!
I waited for my results...my blood sugar was checked again by finger prick test...then I was allowed to go home. My ALP, ALT and Total Protein were slightly elevated. All the other tests were OK. She advised me to see my Gastroenterolgist. As I am intolerant of most meds she could not prescribe me anything...and I have no intention of swallowing Mylanta...with all it's aluminium! I'll keep using Carafate (Sucralate) which my GP prescibed.
Welcome to my nightmare! and... for reading!
Bit of background...long term ME/CFS, FM, MCS & degenerative disc disease. More recently flares of severe cervical spine pain thought to be sero-negative spondyloarthropathy ?Psoriatic arthritis.
Recent onset severe dry eyes. Recent more severe MCS. Constant thirst & feelings of dehydration. All over muscle tenderness. Dry, tight sore muscles in upper back. Burning sensation in legs.
Today I managed to force myself to go on an outing into the city to see an exhibition of the history of world maps including that of Antartica, followed by a picnic in Sydney's Royal Botanic Gardens.
I enjoyed my day but am exhausted! I experienced what must be orthostatic intolerance in a big way as I was walking around the exhibition. Also found myself unable to fully read all the texts next to the displays. After all...I've been bedridden for 6 mths & housebound for another 6 mths...
I feel nauseous & dehydrated every morning. Had a couple of painful bouts of reflux oesophagitis, especially as I was trying to lie down to sleep. Have had a red throat recently...but it's not sore. Had a Chinese Massage & discovered the all over muscle tenderness, with worsening fatigue & weakness.
Decided to present to my local hospital (across the road from massage therapist).
Male Triage nurse said "Nausea is not considered an emergency. I think you should go to a medical centre". I said " I'm NOT leaving...I want to see a doctor!" with that he gave me the paperwork to fill & walked away.
I waited ages then fortunately got to see a really nice & compassionate, experienced lady doctor. Told her my "complex" story. She listened & gave me some reasonable advice & agreed to do some basic blood tests...FBC, UEC, LFT & BSL. I told her my ALP is always slightly elevated & no-one knows why!
I waited for my results...my blood sugar was checked again by finger prick test...then I was allowed to go home. My ALP, ALT and Total Protein were slightly elevated. All the other tests were OK. She advised me to see my Gastroenterolgist. As I am intolerant of most meds she could not prescribe me anything...and I have no intention of swallowing Mylanta...with all it's aluminium! I'll keep using Carafate (Sucralate) which my GP prescibed.
Welcome to my nightmare! and... for reading!