Hi, I'm nearly 20, had ME for 11 years, 6 months and my name is Rosalind Amor.
I have been transferred to a new Dr, Dr Sarah Myhill, since Dr Wights clinic closed along with all his other. She is redoing my Mitochondria tests because apparently Dr Wight, for some odd reason, didn't test them for everything possible.
We finally arranged for the district nurses to come last Tuesday to do blood tests for a few things my local drs should have done 11 years ago and worst of all my Mitochondria ATTP profile.
What frightens me is it showing up clear, no abnormalities. Know that sounds daft but I feel so sick whenever any suggestion is made there is nothing biologically wrong with me. Like trapped. And the thought I could have somehow prevented my past 11 bad years is devestating.
Its daft because I've already had some mitochondria tests which showed abnormalities. (See my blog for more details especially August, September and Oct ones http://rosalindamor-spaceofameguineapig.blogspot.com/). Dr Myhill wasn't even bothered about doing this test but my parents wanted me have it to kinda prove to me I was ill
I wish I was mentally ill, least then I'd have a condition. I hate this being niether
I have been transferred to a new Dr, Dr Sarah Myhill, since Dr Wights clinic closed along with all his other. She is redoing my Mitochondria tests because apparently Dr Wight, for some odd reason, didn't test them for everything possible.
We finally arranged for the district nurses to come last Tuesday to do blood tests for a few things my local drs should have done 11 years ago and worst of all my Mitochondria ATTP profile.
What frightens me is it showing up clear, no abnormalities. Know that sounds daft but I feel so sick whenever any suggestion is made there is nothing biologically wrong with me. Like trapped. And the thought I could have somehow prevented my past 11 bad years is devestating.
Its daft because I've already had some mitochondria tests which showed abnormalities. (See my blog for more details especially August, September and Oct ones http://rosalindamor-spaceofameguineapig.blogspot.com/). Dr Myhill wasn't even bothered about doing this test but my parents wanted me have it to kinda prove to me I was ill
I wish I was mentally ill, least then I'd have a condition. I hate this being niether