This past Tuesday, I had on a nice pair of wedges. As I was walking through the mall, I slipped, jerked my body and for 3 days I couldn't stand up straight. Due to the pain, lack of sleep and being on VFEND (the yeast drug), I spent this past week in bed and this whole weekend unable to function. I finally went to the ER yesterday morning due to the pain. I was in so much pain. At the same time as I am at the ER, I got my period. Saturday, I had a migraine from being due for my period. There are just too many things going wrong. I can't keep up with it.
While at the ER, I found that I have a muscle strain. I have a bruise on my lower back and the doc said it's a muscle pull/tear.
I came home with prescriptions for codeine with tylenol, flexoril, and 800 mg. of ibuprofen. I took the meds, as instructed and ended up being drugged, yet comatose and itching. I was told, "oh, you will sleep on these." Not one wink of sleep yesterday. I feel like I can't catch a break. I can't take this anymore. I feel like the light that I sometimes have in me has gone out.
I slept last night, but I feel absolutely exhausted.
I stopped the yeast medicine that I felt was killing me, or was that just me being sick with CFS? Not sure anymore. My friend with lyme who is like this girl on positivity steroids, says, "You have to keep up with the VFEND...ride out the pain and die off." No thanks. I felt awful and I am in too much pain right now to deal with both.
I do know that this year, I have had more pain than any other year, I don't really know what or why and these questions are swimming around in my head. You know what's even weirder? That I have no desire to go to a doctor to find out why. Who do I go to, will I get an answer and what meds will they suggest that I will surely not be able to take. Lyrica made me slur my words. I was horrible on that drug. I used to search and go to doctor's wherever for this illness and now I am just resigned to it. I can't take the let down anymore and every treatment lasts for a time and then doesn't work anymore.
So, it amazes me the hope, strength and energy some people have on here to go from one doctor to another, try new treatments constantly, fly to different states and countries for help. I am not putting you down, it's just I don't know how you do it. I am exhausted and somewhat resigned to this life with CFS where there is no cure. There is no answer. There are better days due to something you take, but eventually, those better days change and that "new" thing stops working. Sorry, that's just what I see after all of these years. Nothing ever really "sticks" long term.
I am trying to get kefir grains, with no response and no luck. Also, I am reading that kefir only really grows in milk? Is this true? I can't drink goat or cow's milk. I can have coconut milk.
Probiotics have done nothing for me. I do mean nothing. I can take a whole mouth full and there is never a benefit.
I am just feeling completely drained and don't have a lot of hope.
I wrote on FB, how I pulled my back and muscle and people wrote me emails saying, "man, you just don't get a break!" It hurt to hear although it's true. I don't get a break. I am dealing with something constantly. When I got sick back in 1989, it's been a never ending problem and emergency. Every year from 1994 to 2002, I had to have surgery. Surgery for endometriosis, back surgery, major teeth surgery. I have never had a break.
Happy 4th of July! Yippity do.
While at the ER, I found that I have a muscle strain. I have a bruise on my lower back and the doc said it's a muscle pull/tear.
I came home with prescriptions for codeine with tylenol, flexoril, and 800 mg. of ibuprofen. I took the meds, as instructed and ended up being drugged, yet comatose and itching. I was told, "oh, you will sleep on these." Not one wink of sleep yesterday. I feel like I can't catch a break. I can't take this anymore. I feel like the light that I sometimes have in me has gone out.
I slept last night, but I feel absolutely exhausted.
I stopped the yeast medicine that I felt was killing me, or was that just me being sick with CFS? Not sure anymore. My friend with lyme who is like this girl on positivity steroids, says, "You have to keep up with the VFEND...ride out the pain and die off." No thanks. I felt awful and I am in too much pain right now to deal with both.
I do know that this year, I have had more pain than any other year, I don't really know what or why and these questions are swimming around in my head. You know what's even weirder? That I have no desire to go to a doctor to find out why. Who do I go to, will I get an answer and what meds will they suggest that I will surely not be able to take. Lyrica made me slur my words. I was horrible on that drug. I used to search and go to doctor's wherever for this illness and now I am just resigned to it. I can't take the let down anymore and every treatment lasts for a time and then doesn't work anymore.
So, it amazes me the hope, strength and energy some people have on here to go from one doctor to another, try new treatments constantly, fly to different states and countries for help. I am not putting you down, it's just I don't know how you do it. I am exhausted and somewhat resigned to this life with CFS where there is no cure. There is no answer. There are better days due to something you take, but eventually, those better days change and that "new" thing stops working. Sorry, that's just what I see after all of these years. Nothing ever really "sticks" long term.
I am trying to get kefir grains, with no response and no luck. Also, I am reading that kefir only really grows in milk? Is this true? I can't drink goat or cow's milk. I can have coconut milk.
Probiotics have done nothing for me. I do mean nothing. I can take a whole mouth full and there is never a benefit.
I am just feeling completely drained and don't have a lot of hope.
I wrote on FB, how I pulled my back and muscle and people wrote me emails saying, "man, you just don't get a break!" It hurt to hear although it's true. I don't get a break. I am dealing with something constantly. When I got sick back in 1989, it's been a never ending problem and emergency. Every year from 1994 to 2002, I had to have surgery. Surgery for endometriosis, back surgery, major teeth surgery. I have never had a break.
Happy 4th of July! Yippity do.