I found out about another with ME/CFS in my country town from my ME/CFS society, so today I was feeling up to giving her a call to let her know I was here too and chatting to her on the phone.
It was very interesting hearing her talk exactly about the same issues I have around here eg no doctors in our town for those with ME/CFS so we are all treated bad in this town.. its taken her over 25 years to be diagnosed as the doctors here werent good (she ended up going to the city like myself to get a diagnoses). She was telling me how a local doctor here has screwed up her work cover case by the things he's wrote.
Like what happened to myself.. a doctor here sent her to the psychriastrists as he believed she had bipolar and they had to tell him she didnt (the doctor I still see now used to insist the issue was bipolar thou two psychs. who'd seen me said no).
She was telling me about a well known city ME/FM specialist who she has just started to see, telling her about our local towns reputation as far as FM and CFS patients go and that at least a couple of others have been in contact with complaints to one of the orgs. umm so I guess there must be a few others in this town that Im currently unaware of stuggling with the local doctors.
She's going to see a new doctor coming into this town (one I had been thinking about seeing myself) to see what she is going to like. So I will see how she goes before I now get serious about approaching the new doctor here.
She's alone like myself with no support here so we will be catching up hopefully some time soon to more so talk about the ME/CFS situation here.
I think she said something about having thought about protesting about the bad treatment in our town of FM and ME/CFS patients. I actually think that would be a great idea. If we did something like that it would make our local newspaper and we could get them to possible do an article on ME/CFS. Our doctors need a good kick up their butts.
I can see some possibilities happening of some ME publicy. (We also started discussing the possibility of starting up a local ME/CFS group). All I know is we really need to do something to change things for the ones with these illnesses in our local town.
It was very interesting hearing her talk exactly about the same issues I have around here eg no doctors in our town for those with ME/CFS so we are all treated bad in this town.. its taken her over 25 years to be diagnosed as the doctors here werent good (she ended up going to the city like myself to get a diagnoses). She was telling me how a local doctor here has screwed up her work cover case by the things he's wrote.
Like what happened to myself.. a doctor here sent her to the psychriastrists as he believed she had bipolar and they had to tell him she didnt (the doctor I still see now used to insist the issue was bipolar thou two psychs. who'd seen me said no).
She was telling me about a well known city ME/FM specialist who she has just started to see, telling her about our local towns reputation as far as FM and CFS patients go and that at least a couple of others have been in contact with complaints to one of the orgs. umm so I guess there must be a few others in this town that Im currently unaware of stuggling with the local doctors.
She's going to see a new doctor coming into this town (one I had been thinking about seeing myself) to see what she is going to like. So I will see how she goes before I now get serious about approaching the new doctor here.
She's alone like myself with no support here so we will be catching up hopefully some time soon to more so talk about the ME/CFS situation here.
I think she said something about having thought about protesting about the bad treatment in our town of FM and ME/CFS patients. I actually think that would be a great idea. If we did something like that it would make our local newspaper and we could get them to possible do an article on ME/CFS. Our doctors need a good kick up their butts.
I can see some possibilities happening of some ME publicy. (We also started discussing the possibility of starting up a local ME/CFS group). All I know is we really need to do something to change things for the ones with these illnesses in our local town.
