It often happens .. when you start feeling better you visit the forum less. I do. Last September i was in a very bad place, but I have improved a lot (energy wise, cognitive is as bad as ever). I wanted to share because I know, from experience, we are all hanging on to these little bits of hope.
In September I had to lay down during the day, was mostly housebound, could not do any exercise or walk too far. Now I can go out most days, do not even need to go back to bed during the day and am even considering starting a little bit of exercise.
This is what might be responsible for that
- me stopping imunovir ( i think this was the main one)
-starting ldn, i am on 3mg and not going to increase any time soon
-natural (animal based) vitamin -a
-200mg 5-htp
-magnesium succinate (krebs cycle, i have low succinate)
-rhodiola (taking 500 mg daily, immunomodulato)
-host defense mushrooms, (still building up slowly drop by drop)
-low dose sublingual melatonin 300 mcg
- low sublingual pregnanelone 2.5 mg (rationale; many, if you have low (below 100) it is worth to check this out)
-r-la 200mg and carnitine 3 g and zinc 30 mg are also biggies
My next plan is to work on my cognitive issues and neuropathy. I am planning to try piracetam aniracetam, active ribo-phosphate sublingual,, uridine, and switching to an all bifido probiotic. I am researching NMDA receptors, I think they are a biggie in CFS. I think sarcosine could be a great option for us, unfortunately the only supplement that includes it has also aspartame.. so this is on the bottom of my list. I sped a lot of time researching supplements, i feel a bit guilty not sharing all my theories, but oftentimes they dont work out and are quite convoluted . So now what i do is just tell what works for me now, this is ofcourse pesonal, but worth to check out. One by one introduce a supplement, and keep a symptom diary! This helped me so much!
ofcourse I shouldnt be geting cocky yet; ive been there before, only to cruelly have it all taken away.. Ill keep you posted
In September I had to lay down during the day, was mostly housebound, could not do any exercise or walk too far. Now I can go out most days, do not even need to go back to bed during the day and am even considering starting a little bit of exercise.
This is what might be responsible for that
- me stopping imunovir ( i think this was the main one)
-starting ldn, i am on 3mg and not going to increase any time soon
-natural (animal based) vitamin -a
-200mg 5-htp
-magnesium succinate (krebs cycle, i have low succinate)
-rhodiola (taking 500 mg daily, immunomodulato)
-host defense mushrooms, (still building up slowly drop by drop)
-low dose sublingual melatonin 300 mcg
- low sublingual pregnanelone 2.5 mg (rationale; many, if you have low (below 100) it is worth to check this out)
-r-la 200mg and carnitine 3 g and zinc 30 mg are also biggies
My next plan is to work on my cognitive issues and neuropathy. I am planning to try piracetam aniracetam, active ribo-phosphate sublingual,, uridine, and switching to an all bifido probiotic. I am researching NMDA receptors, I think they are a biggie in CFS. I think sarcosine could be a great option for us, unfortunately the only supplement that includes it has also aspartame.. so this is on the bottom of my list. I sped a lot of time researching supplements, i feel a bit guilty not sharing all my theories, but oftentimes they dont work out and are quite convoluted . So now what i do is just tell what works for me now, this is ofcourse pesonal, but worth to check out. One by one introduce a supplement, and keep a symptom diary! This helped me so much!
ofcourse I shouldnt be geting cocky yet; ive been there before, only to cruelly have it all taken away.. Ill keep you posted