PLEASE Read so everyone knows what MCWPA has done and is going to do. So much done in so little time and yet more to do especially in the next couple of VERY critical months. Read and get involved in any way possible!
2,172 Members as of 25 March 2011 - MCWPA started in August of 2010!!
Moving Forward
Posted by Tina Marie Miller Tidmore 24 March 2011 via Muffin
The MCWPA team is moving forward with the actions you said you wanted to accomplish in the first half of 2011.
Next action:
In the January survey, sending letters to other patient organizations that are now linked to XMRV was high in the survey response. So we are ready to start on that. The first and obvious one is prostate cancer. We would like to ask for any patient who would like to help in writing this letter, please contact us at volunteers@mcwpa.org.
Action Completed:
Doctors Need to Know (report- we were informed of people all over the world who mailed letters to their doctor. Over 1,000 viewed the instructions on the MCWPA Patient Discussion board.)
Money raised for actions:
We have the money for the press release to be distributed internationally through a wire service of the next big biological finding. It has been "pre-written," waiting for the published study. We have the money for the Public Service Announcement to be distributed to cable networks in May.
Money needed:
We need $1,450 more for the print ads on May 12. (Goal for this project was $3,000 - total of 20 ads with the MCWPA contribution on each being $150.)
To make a donation, go here: http://www.causes.com/causes/511536-me-cfs-worldwide-patient-alliance
Progress report:
We have at least four planned submissions for the Public Service Announcement contest. We hope to have examples posted for patient feedback next week.
Please read all bulletins so you don't miss the opportunity.
MCWPA Team
2,172 Members as of 25 March 2011 - MCWPA started in August of 2010!!
Moving Forward
Posted by Tina Marie Miller Tidmore 24 March 2011 via Muffin
The MCWPA team is moving forward with the actions you said you wanted to accomplish in the first half of 2011.
Next action:
In the January survey, sending letters to other patient organizations that are now linked to XMRV was high in the survey response. So we are ready to start on that. The first and obvious one is prostate cancer. We would like to ask for any patient who would like to help in writing this letter, please contact us at volunteers@mcwpa.org.
Action Completed:
Doctors Need to Know (report- we were informed of people all over the world who mailed letters to their doctor. Over 1,000 viewed the instructions on the MCWPA Patient Discussion board.)
Money raised for actions:
We have the money for the press release to be distributed internationally through a wire service of the next big biological finding. It has been "pre-written," waiting for the published study. We have the money for the Public Service Announcement to be distributed to cable networks in May.
Money needed:
We need $1,450 more for the print ads on May 12. (Goal for this project was $3,000 - total of 20 ads with the MCWPA contribution on each being $150.)
To make a donation, go here: http://www.causes.com/causes/511536-me-cfs-worldwide-patient-alliance
Progress report:
We have at least four planned submissions for the Public Service Announcement contest. We hope to have examples posted for patient feedback next week.
Please read all bulletins so you don't miss the opportunity.
MCWPA Team
