UPDATE: Myra McClure Stepped Down from the "CFS" SEP! We did it!
We still need to get the dentists and psychologists (except for Friedberg) replaced with virologists, retrovirologists, neurologists and immunologists, so please refer to my latest blog post for an easy letter you can send on that score. Again: Yea Us!.
New Post:
http://forums.aboutmecfs.org/entry....Us!-Now-lets-get-some-actual-scientists-on-it!
________________________________________
This is my first blog post ever. So exciting!
As Cort reported, the new composition of the NIH's "CFS" panel is top-heavy with psychologists, dentists and Myra McClures. That's right, NIH has been taking some no-cost steps to appease us, but where the rubber hits the road- the grant making process, it is showing it's true colors once again. This is just NIH's latest move in it's historical war on ME science. More info at CFScentral.com.
I wrote the following letter which I encourage you to cut and paste and send to the following people. I used most of Patricia Carter's letter then added my own objections to McClure's saying things in the press which were unsupported by the science and also a complaint on the over-all make up of the SEP (text authored by Dr. Yes).
How to do this extra-easy advocacy:
1. Copy the following subject line and paste it into the subject field in your email.
Subject Line:
2. Copy the following text (the letter) into your main field of your email:
email text:
3. Sign the letter at the bottom.
4. Send the letter to the following addresses:
kathleen.sebelius@hhs.gov
francis.collins@nih.gov
dennis.mangan@nih.gov
toni.scarpa@nih.gov
hoshawb@csr.nih.gov
AskDrH@ostp.gov (President Obama's Science Advisor, John Holdren)
Extra Credit:
Go to these contact pages for your members of congress and president and send the email to them:
Find your congressperson at writerep.house.gov/writerep/welcome.shtml
Find your senator at senate.gov (search in top right corner)
http://www.whitehouse.gov/contact/
Congratulations and Thank You! You just saved ME patients from future suffering!
We still need to get the dentists and psychologists (except for Friedberg) replaced with virologists, retrovirologists, neurologists and immunologists, so please refer to my latest blog post for an easy letter you can send on that score. Again: Yea Us!.
New Post:
http://forums.aboutmecfs.org/entry....Us!-Now-lets-get-some-actual-scientists-on-it!
________________________________________
This is my first blog post ever. So exciting!
As Cort reported, the new composition of the NIH's "CFS" panel is top-heavy with psychologists, dentists and Myra McClures. That's right, NIH has been taking some no-cost steps to appease us, but where the rubber hits the road- the grant making process, it is showing it's true colors once again. This is just NIH's latest move in it's historical war on ME science. More info at CFScentral.com.
I wrote the following letter which I encourage you to cut and paste and send to the following people. I used most of Patricia Carter's letter then added my own objections to McClure's saying things in the press which were unsupported by the science and also a complaint on the over-all make up of the SEP (text authored by Dr. Yes).
How to do this extra-easy advocacy:
1. Copy the following subject line and paste it into the subject field in your email.
Subject Line:
2. Copy the following text (the letter) into your main field of your email:
email text:
3. Sign the letter at the bottom.
4. Send the letter to the following addresses:
kathleen.sebelius@hhs.gov
francis.collins@nih.gov
dennis.mangan@nih.gov
toni.scarpa@nih.gov
hoshawb@csr.nih.gov
AskDrH@ostp.gov (President Obama's Science Advisor, John Holdren)
Extra Credit:
Go to these contact pages for your members of congress and president and send the email to them:
Find your congressperson at writerep.house.gov/writerep/welcome.shtml
Find your senator at senate.gov (search in top right corner)
http://www.whitehouse.gov/contact/
Congratulations and Thank You! You just saved ME patients from future suffering!