I have had a couple of good days and I want to share them with you. I may not be so descriptive, but instead, just talk of how happy I am to have a couple of good days. I am trying new therapies and I am sure that has something to do with it. I will mention them first. I am doing peptide amino acid shots. For anyone who doesn't know what they are, they are shots for allergies. They were developed in Germany. I showed the right missing sequence through blood work and I am a match. They are expensive and are supposed to help with food allergies. I have had 2 so far and I can tell you that my rash, eczema, went away and I have had ice cream 3 times in one week along with other foods that have soy or things I am allergic to. Normally, milk causes me to be on the john and on top of that, the cramp it causes is awful. Haven't had any of that. NO ALLERGIES. NONE. No benadryl and no being up all night with some scratching and anxiety. I can't believe it. I am severely allergic to things including my hormones.
The other treatment I am doing is Avipaxin, which is for brain inflammation and pain. It helps to boost the mood and my fibro has not been as bad. I feel more with it mentally. This last period was not that bad. I could still keep up, not quite as much, but I didn't become so disabled from it. I am also taking milk thistle for the liver. I put it in a tea made of green tea minus the caffeine. I have also gone back to taking Folapro and B-12. Perque.
So, my friend Janis B came to visit from Ohio and we went to NYC. I was not too well and the next day after NYC, I was completely out of it. But, the day after that, I was good! I had to go to Atlantic City because I was doing a jewelry selling event at Caesar's. I drove there, did the event and that was a good day. That was Thursday. Friday I was not so good but not horrible. I was able to sit out by the pool at Caesar's and then I went onto the beach. I slept really soundly on Friday night and Saturday I went to the beach for the entire day. I was able to sit in the sun for 4 hours, go into the ocean 3 times and I took a long walk on the beach. Then, I drove home in a lot of traffic.
As I was lying on my beach towel, I felt happy and I could fantasize about things. What I want for the future. I have not been able to do that for awhile. The day was glorious with a breeze and it wasn't too hot. The ocean was cold but once I got in I loved it. Many jellyfish though. In fact, they were everywhere and they were clear with an amber color in the middle. I have never seen that before. I took a walk where I walked along the ocean so that I was really working my legs and feet. I feel like I rarely exercise.
Last night I was exhausted and I thought that today, Sunday, I would be too beat to do anything. Guess again! I woke up today after 8 hours of decent sleep and I put a wash in. Then, I decided to drive into the city by myself and see the movie "City Island" with Andy Garcia. Loved it. I had great parking which is also unusual for Philly. I looked good too. Makeup, jewelry, hair done and smelling good. I know this sounds crazy to mention, but many of us know how hard it is to do all of that. After the movies, I went to South street and hung out at Whole Foods and ate outside. Then, I came home after grocery shopping and did another load of laundry. I also painted my toe nails and nails! HOLY CRAP...right? That is a lot. I don't usually do this much. Something has changed.
So, yeah. I have had some better days. More energy and not so down. Here's hoping it sticks. When you have this kind of energy, you just want to keep going so I am trying to keep it at bay. I would really like to work more. BUT, I did give myself off for this summer and things are turning around.
Just an update. Some hope. Some hope not just for me, but for all of us.
The other treatment I am doing is Avipaxin, which is for brain inflammation and pain. It helps to boost the mood and my fibro has not been as bad. I feel more with it mentally. This last period was not that bad. I could still keep up, not quite as much, but I didn't become so disabled from it. I am also taking milk thistle for the liver. I put it in a tea made of green tea minus the caffeine. I have also gone back to taking Folapro and B-12. Perque.
So, my friend Janis B came to visit from Ohio and we went to NYC. I was not too well and the next day after NYC, I was completely out of it. But, the day after that, I was good! I had to go to Atlantic City because I was doing a jewelry selling event at Caesar's. I drove there, did the event and that was a good day. That was Thursday. Friday I was not so good but not horrible. I was able to sit out by the pool at Caesar's and then I went onto the beach. I slept really soundly on Friday night and Saturday I went to the beach for the entire day. I was able to sit in the sun for 4 hours, go into the ocean 3 times and I took a long walk on the beach. Then, I drove home in a lot of traffic.
As I was lying on my beach towel, I felt happy and I could fantasize about things. What I want for the future. I have not been able to do that for awhile. The day was glorious with a breeze and it wasn't too hot. The ocean was cold but once I got in I loved it. Many jellyfish though. In fact, they were everywhere and they were clear with an amber color in the middle. I have never seen that before. I took a walk where I walked along the ocean so that I was really working my legs and feet. I feel like I rarely exercise.
Last night I was exhausted and I thought that today, Sunday, I would be too beat to do anything. Guess again! I woke up today after 8 hours of decent sleep and I put a wash in. Then, I decided to drive into the city by myself and see the movie "City Island" with Andy Garcia. Loved it. I had great parking which is also unusual for Philly. I looked good too. Makeup, jewelry, hair done and smelling good. I know this sounds crazy to mention, but many of us know how hard it is to do all of that. After the movies, I went to South street and hung out at Whole Foods and ate outside. Then, I came home after grocery shopping and did another load of laundry. I also painted my toe nails and nails! HOLY CRAP...right? That is a lot. I don't usually do this much. Something has changed.
So, yeah. I have had some better days. More energy and not so down. Here's hoping it sticks. When you have this kind of energy, you just want to keep going so I am trying to keep it at bay. I would really like to work more. BUT, I did give myself off for this summer and things are turning around.
Just an update. Some hope. Some hope not just for me, but for all of us.