I went to Walmart with a friend today. I knew I was risking a flare, but I had a five dollar gift card to use up. So we went to Walmart. Started walking around, smelled a million chemicals and toxins. Started to get a headache. Then, started to flare up badly. By the time we were at the other side of the store, I was almost ready to scream that I needed to leave immediately. Sensory overload. All I could think of is, it's like rabies, but not. All the nerve endings are flared up. I've been dying since I came home. We didn't stay long, but it was enough to kill me. The five dollar gift card was great. I bought five cans of catfood for my cat and a large thing of twelve rolls of toilet paper and I only had to pay two dollars and seven cents. But it's not worth the screaming flareup agony I'm in.
I still have some of my tylenol/butalbital, so I took that tonight. I still cannot afford to refill it. Not at fifty six dollars a bottle. I tried the donnatal the other night and that made me sick. Put me to sleep, but woke me up with racing heart and then gave me a bad rebound headache and nausea the next day. I don't know what I'm going to do. The company that makes the branded version of the butabiltal, they don't have a patient assistance program for this drug. The brand name is Phrenilin. The doc had given me the 120 pill size. I can ask her to give me half and see if it's half the money. I'm still waiting on my medicaid application. I applied on May 2nd. They get a month to answer you. If I get it back, we can try to get them to pay for it.
Anyway, every time I go to Walmart, I get flared up for days. How does anyone work there? I don't get it. I can't be in there for more than a few minutes and then I start to flare. My neighbor, who had the energy of a hundred people, worked there last year. She started to get sick and sicker until guess what, she now gets POTS attacks. She had to quit. And she hasn't been okay since working there. It has to be all the toxic chemicals and fumes coming off everything. It's like a toxic soup in there.
And then when I came home, I ultra pushed it and did my laundry. And since the laundry room is like a mecca for CFIDS flares, I'm dead. Totally dead. I'll be down all weekend. I hope I'll be okay to go for my bloodwork on Monday.
I am in so much pain.
I still have some of my tylenol/butalbital, so I took that tonight. I still cannot afford to refill it. Not at fifty six dollars a bottle. I tried the donnatal the other night and that made me sick. Put me to sleep, but woke me up with racing heart and then gave me a bad rebound headache and nausea the next day. I don't know what I'm going to do. The company that makes the branded version of the butabiltal, they don't have a patient assistance program for this drug. The brand name is Phrenilin. The doc had given me the 120 pill size. I can ask her to give me half and see if it's half the money. I'm still waiting on my medicaid application. I applied on May 2nd. They get a month to answer you. If I get it back, we can try to get them to pay for it.
Anyway, every time I go to Walmart, I get flared up for days. How does anyone work there? I don't get it. I can't be in there for more than a few minutes and then I start to flare. My neighbor, who had the energy of a hundred people, worked there last year. She started to get sick and sicker until guess what, she now gets POTS attacks. She had to quit. And she hasn't been okay since working there. It has to be all the toxic chemicals and fumes coming off everything. It's like a toxic soup in there.
And then when I came home, I ultra pushed it and did my laundry. And since the laundry room is like a mecca for CFIDS flares, I'm dead. Totally dead. I'll be down all weekend. I hope I'll be okay to go for my bloodwork on Monday.
I am in so much pain.