One never knows, do one ? — Unknown
Long Haul COVID, or LongHaulers, is way too close to ME/CFS in its symptoms and effects
for this not to have been noted by the highly trained minds in the medical profession (insert
sarcasm emoji here), and I’ve wondered why no else is bringing this up, other than vague
mutterings about “apparent” similarities between the two. And I know I could be way
off-base here, but felt the need to, you know, share ....
I’d say the similarities are way more than just “apparent”. They’re almost absolute,
and very real ...Tho apparently, not undeniable ...
between the predominance of previous EBV infections (Epstein-Barr Virus, i.e., mononucleosis
among others) in such a large number of our population, at least as expressed here on PR, and
COVID, another viral infection ...
and the fact that they’d be out a giga-zillion dollars if M.E. were proven to be ‘real’, in medical
terms. Not to mention the effects on state disability payments. We all, or I’m pretty sure most
of us, are familiar with those metrics, and the possible reasons that M.E. STILL isn’t accepted as
a ‘real’ illness, with very real effects on lives, on the quality of those lives. And we’re all pretty
familiar with the futility of trying to get recognition of those effects on our lives from either of
those two basta…. uhhhh, bastions of care and concern …
So I was fascinated by this article in LiveScience, which I’ve posted a link to below...
the whole thing …
“Many researchers point to the similarity between long COVID and chronic fatigue syndrome
(CFS), a condition previouslylinked to immune dysregulation.
"Chronic fatigue is a condition of extreme fatigue in someone present for more
than six months, accompanied by post-exertional malaise," said Dr. Deepak
Ravindran(opens in new tab), co-founder of the Berkshire Long COVID Integrated
Service in England. In many patients, it presents after a viral illness,
Ravindran told Live Science in an email.
than six months, accompanied by post-exertional malaise," said Dr. Deepak
Ravindran(opens in new tab), co-founder of the Berkshire Long COVID Integrated
Service in England. In many patients, it presents after a viral illness,
Ravindran told Live Science in an email.
"There are many similarities between long COVID symptoms and chronic fatigue
symptoms, including fatigue, brain fog, aches and pains, stomach disturbances, chest
pain and irregular heart rates," Ravindran said. "The present understanding is that there is
likely to be some underlying mechanisms that are similar to both conditions."
There are no known curative treatments for long COVID, but there are some ways to
manage symptoms, Katz told Live Science.
According to the review in Nature Reviews Microbiology, pharmacological
treatments for long COVID symptoms include:
• Intravenous immunoglobulins: Immunoglobulins, often referred to as antibodies,
are proteins released by the immune system to identify and neutralize bacteria and
viruses. Patients are given a cocktail of these through a drip into a vein to treat
immune dysfunction.
• Low-dosage naltrexone: Medication primarily used for the treatment of alcohol
and opioid use disorders and also prescribed off-label to treat some chronic pain and
autoimmune conditions. This helps reduce inflammation within the nervous system,
according to a 2014 review published in the journal Clinical Rheumatology
(opens in new tab).
• Beta-blockers: Medication prescribed for blood pressure and heart rate disruptions.
• Anticoagulants: Medications that prevent the formation of blood clots.
Other options include:
• Antihistamines: Medication used to relieve allergy symptoms such as running nose
and congestion.
• Paxlovid: Antiviral medication used for treating COVID-19. Paxlovid reduces the
mortality and hospitalization rates in patients with COVID-19, but it's unclear how
effective this drug may be against long COVID symptoms, according to a 2022
meta-analysis published in the journal Annals of Medicine(opens in new tab).
• Sulodexide: Medication used to treat vein and artery disorders. Preliminary
study published in the journal Archives of Cardiovascular Diseases(opens in new tab)
has shown that Sulodexide may help improve cardiovascular symptoms of long COVID.”
Long COVID: 3 years on, here's what we know so far … 02-13symptoms, including fatigue, brain fog, aches and pains, stomach disturbances, chest
pain and irregular heart rates," Ravindran said. "The present understanding is that there is
likely to be some underlying mechanisms that are similar to both conditions."
There are no known curative treatments for long COVID, but there are some ways to
manage symptoms, Katz told Live Science.
According to the review in Nature Reviews Microbiology, pharmacological
treatments for long COVID symptoms include:
• Intravenous immunoglobulins: Immunoglobulins, often referred to as antibodies,
are proteins released by the immune system to identify and neutralize bacteria and
viruses. Patients are given a cocktail of these through a drip into a vein to treat
immune dysfunction.
• Low-dosage naltrexone: Medication primarily used for the treatment of alcohol
and opioid use disorders and also prescribed off-label to treat some chronic pain and
autoimmune conditions. This helps reduce inflammation within the nervous system,
according to a 2014 review published in the journal Clinical Rheumatology
(opens in new tab).
• Beta-blockers: Medication prescribed for blood pressure and heart rate disruptions.
• Anticoagulants: Medications that prevent the formation of blood clots.
Other options include:
• Antihistamines: Medication used to relieve allergy symptoms such as running nose
and congestion.
• Paxlovid: Antiviral medication used for treating COVID-19. Paxlovid reduces the
mortality and hospitalization rates in patients with COVID-19, but it's unclear how
effective this drug may be against long COVID symptoms, according to a 2022
meta-analysis published in the journal Annals of Medicine(opens in new tab).
• Sulodexide: Medication used to treat vein and artery disorders. Preliminary
study published in the journal Archives of Cardiovascular Diseases(opens in new tab)
has shown that Sulodexide may help improve cardiovascular symptoms of long COVID.”
https://www.livescience.com/long-co...=push&utm_campaign=2023-02-13-Living-with-lon
incredible similarities between M.E. and Long Haul that might be of interest, particularly with its
references to Dr. Bruce Patterson’s Long Haul COVID tests
Using covid longhauler test on me/cfs patients
https://forums.phoenixrising.me/threads/using-covid-longhauler-test-on-me-cfs-patients.88722/
https://forums.phoenixrising.me/threads/using-covid-longhauler-test-on-me-cfs-patients.88722/