Busy week this week and yet I felt much better from Monday onwards than I did the preceding week. What changed? I re started my liposomal glutathione in the AM 5ml's. This no longer knocks me on my ass and I'm able to tolerate it just fine. But the added benefit is I get a huge energy boost which lasts all day.
Lots of updates this week:
Glutathione
This energy boost isn't just physical but more importantly is mental which means only a smidge of mental fatigue. Brain fog hasn't really been around since I started the egcg but mental exhaustion and fatigue reappeared after I stopped the oat bran.
Lauricidin
Because the mental fatigue was so bad 10 days in a row I decided last week to start Lauricidin because usually it has a huge effect on my mental energy and ability to concentrate for hours without getting sleepy. While this did work very well (until the glutathione took over and I stopped the Lauricidin - see below). The Lauricidin must have killed a lot of good bacteria because I'm now semi constipated. I've also had abdominal issues and trapped wind because of this this week. I had been enjoying zero gastro issues for a long time. Because of this I doubt I'll take Lauricidin again anytime soon.
Why did I take it? A theory that neutropenia is caused by viruses. Lauricidin is the only decnet natural anti viral I know apart from andrographis. So that's why I tried it
Joshua Leisk update
Josh has been busy continuing his citizen science looking at people's blood samples under microscope. He says he's now done almost 800 samples and he's seen the same red blood cell abnormalities in all of them. He's hones his treatment for the red blood cell issues to the following:
1g nac 3 x a day
500mg bicarb between meals 3x a day
With this he seems immediate resolution over 6 days of coagulation. As Dr Yaeger is seeing something similair and so are others I think it's safe to say that this is all the same thing.
From the above to this:
Hematology, Neutropenia and vaccine injury
I got a letter back from my consultant hematologist. I accessed my private GP notes to view this. Which said "neutropenia can often occur after glandular fever and covid jab." As my glandular fever resolve ages ago I'm convinced the covid jab must be the source. Plus if the NHS are saying this they must be seeing it a lot. Or why have any certainty in it at all?
--
I've got a new blood test next week.
I'm definitely starting to feel better. What I am noticing is that the protocol seems to increase inflamation and this ends up causing problems in my upper back. But at the same time when this occurs my energy levels are very stable PEM is pretty much non existent and I'm able to go out and do things without too much payback. I believe that the inflamation in my body goes high at these times but I've no idea why.
It's not clear if this lasts long term though or if it's some sort of long term healing reaction.
I forgot to say the only thing that helps get rid of this upper back inflamation is to go for a walk. Which gets rid of it for 24 to 48 hours. So maybe lack of blood flow? Could be anything.
Booster
I've decided not to get the booster for the time being. I'm quite concerned about further side effects but I'm also concerned about relapsing for 3 months. Part of me thinks if my protection is good enough with 2 vaccines and I'm strong and feel good then surely my body will be able to beat the virus back? Especially considering how many blood thinning things I take. I'd rather have a booster but Dr Weir and others have recommended ME and LC patients do not get vaccines. Which peaked me interest in reconsidering.
@Jyoti @Mary @Nuno @hapl808
Lots of updates this week:
Glutathione
This energy boost isn't just physical but more importantly is mental which means only a smidge of mental fatigue. Brain fog hasn't really been around since I started the egcg but mental exhaustion and fatigue reappeared after I stopped the oat bran.
Lauricidin
Because the mental fatigue was so bad 10 days in a row I decided last week to start Lauricidin because usually it has a huge effect on my mental energy and ability to concentrate for hours without getting sleepy. While this did work very well (until the glutathione took over and I stopped the Lauricidin - see below). The Lauricidin must have killed a lot of good bacteria because I'm now semi constipated. I've also had abdominal issues and trapped wind because of this this week. I had been enjoying zero gastro issues for a long time. Because of this I doubt I'll take Lauricidin again anytime soon.
Why did I take it? A theory that neutropenia is caused by viruses. Lauricidin is the only decnet natural anti viral I know apart from andrographis. So that's why I tried it
Joshua Leisk update
Josh has been busy continuing his citizen science looking at people's blood samples under microscope. He says he's now done almost 800 samples and he's seen the same red blood cell abnormalities in all of them. He's hones his treatment for the red blood cell issues to the following:
1g nac 3 x a day
500mg bicarb between meals 3x a day
With this he seems immediate resolution over 6 days of coagulation. As Dr Yaeger is seeing something similair and so are others I think it's safe to say that this is all the same thing.
From the above to this:
Hematology, Neutropenia and vaccine injury
I got a letter back from my consultant hematologist. I accessed my private GP notes to view this. Which said "neutropenia can often occur after glandular fever and covid jab." As my glandular fever resolve ages ago I'm convinced the covid jab must be the source. Plus if the NHS are saying this they must be seeing it a lot. Or why have any certainty in it at all?
--
I've got a new blood test next week.
I'm definitely starting to feel better. What I am noticing is that the protocol seems to increase inflamation and this ends up causing problems in my upper back. But at the same time when this occurs my energy levels are very stable PEM is pretty much non existent and I'm able to go out and do things without too much payback. I believe that the inflamation in my body goes high at these times but I've no idea why.
It's not clear if this lasts long term though or if it's some sort of long term healing reaction.
I forgot to say the only thing that helps get rid of this upper back inflamation is to go for a walk. Which gets rid of it for 24 to 48 hours. So maybe lack of blood flow? Could be anything.
Booster
I've decided not to get the booster for the time being. I'm quite concerned about further side effects but I'm also concerned about relapsing for 3 months. Part of me thinks if my protection is good enough with 2 vaccines and I'm strong and feel good then surely my body will be able to beat the virus back? Especially considering how many blood thinning things I take. I'd rather have a booster but Dr Weir and others have recommended ME and LC patients do not get vaccines. Which peaked me interest in reconsidering.
@Jyoti @Mary @Nuno @hapl808