• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Some alternative ME/CFS forums and other resources with the yahoogroups closing

I'm posting this to some yahoogroups tonight. In case it is of interest to anyone, I thought I would share it here. Tom
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With yahoogroups closing on December 15, I thought I would share some links to alternative forums and some other links that people might find of use.


Phoenix Rising Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) Forums <https://forums.phoenixrising.me/>

Science for ME: Where Science and ME/CFS Community Meet <https://www.s4me.info/>

Foggy Friends Where ME/CFS Sufferers Unite <https://www.foggyfriends.org/forum/forum.php>


Support & info groups
<https://phoenixrising.me/resources/support-group-websites>

Research Charities
<https://phoenixrising.me/resources/research-charities>

ME Research: lists the research projects around the world that are recruiting (currently there are 43)
<https://meresearch.info/>

Dr. Marc-Alexander Fluks finds a lot of interesting articles which he shares to various mailing lists. His website is at http://www.me-net.combidom.com/meweb/index.htm

I'm active on various social media channels. Here are some links:
Twitter <https://twitter.com/TomKindlon>
Facebook - Tom Kindlon's ME CFS & related page <https://www.facebook.com/tomkindlonmecfs>
Pinterest <https://www.pinterest.com/tomkindlon>
Tumblr <http://myalgicencephalomyelitiscfstom.tumblr.com/>
ResearchGate <https://www.researchgate.net/profile/Tom_Kindlon2>
Instagram <https://www.instagram.com/tomkindlon/>

See you all around,

Tom Kindlon

Comments

Phoenix Rising Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS) Forums <https://forums.phoenixrising.me/>

Science for ME: Where Science and ME/CFS Community Meet <https://www.s4me.info/>

I'm wondering if anyone knows the use-case or mission-oriented difference between Pheonix rising and S4Me. I'm just honestly and purely naively trying to understand why they didn't join forces as one.

It seems combining forces would be more helpful in our fight for biomarkers, treatments, a cure, and disseminating information and encouraging discourse in the ME community. 🙏
 

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Tom Kindlon
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