Dose 3 was
Egcg 125mg
No lion's mane
480mg reishi
No oat bran
Rest of protocol the same
As discussed for the hell of it I tried 325mg egcg in the am and at lunch. I still had dizziness while at this dose but it wasn't a major concern. In that I wasn't worried it was a sign of something bad. Not yet anyway.
As of this evening the dizziness was worse after taking the reishi extract. Which is kind of what I've noticed the whole 22 days but this time I took it 2 hours after everything else. So it could only be that that had the effect. My lymph nodes were thick and squidgy after this dose and returned to a normal size an hour or so later. So my immune system is still dumping something when taking the resihi extract. Again not surprising as over the last 3 years ive take all sorts of traditional remedies and noticed that.
So today was a success really. Unless I wake up crashed with very and fatigue in the morning - hoping not!! I'm still trusting that the gdh pathway is a common ME pathway. Which for all I know it might not be.
Today I drove for about an hour but all broken up, painted for half an hour, exerted myself at the higher limit of what's made me crash in the last 2 weeks, did some shopping. I only noticed dizziness and physical muscular fatigue at the end of the painting session + neck stiffness was a lot worse after painting.
But really if I crash badly in the morning this experiments pretty much been a failure. So we will see. Personally I'm confident I'll wake up with fatigue and feel a tad rough tomorrow morning. As I have almost every day recently.
So differences to pre protocol:
X PEM and fatigue does appear to be blocked for daily chores and work (not inc any exercise of any kind)
X mental clarity is better but only on a good day. On a bad day the neuro inflammation comes right back. Which makes you feel like your heads swimming all day.
X neck stiffness much better. Able to concentrate and have my neck at angles (think reading, or bent over doing a puzzle. That sort of thing) which wasn't possible before at all.
X can read out loud for periods without totally buggering up my voice box etc
X cranial cervical junction inflammation. Right in the centre just below be skull bone at the back has gone. I haven't felt this for a few days now maybe 4 days. It just seems to have totally lifted.
X Occipital swelling also seems to be gone
X able to go out each day if need be, usually tires me out but I can do this without feeling really sick and unwell post.
X ME sore throat feeling has gone.
X allergies might have improved but to be honest I won't really know if there true until Feb next year. Because my allergies are worse when tree pollen first goes into the air.
X chemical sensitives seem vastly improved. Not really sure this has anything to do with the protocol. But I can tolerate right guard anti perspirant again. I am in a very chemical free house though and suspect this has a lot to do with it.
X Ulcers (not had any for 22 days) and wound healing in the mouth is much better. The gylcine has been very sharp and acidic and even though this has sharpened my teeth i haven't had any oral complaints. Won't know if this has properly worked for a few months, but this was a very annoying symptom that used to drive me mad.
For contrast I did not feel this good last summer. Whilst summer used to make me feel better that all stopped 2 years ago when my body just seemed to become a lot worse and I didn't really improve in the summer months much.
History wise that's important for the reader: I've always felt better taking some traditional remedies in the right therapeutic dose. So Lauricidin at 9000mg a day. Andrographis at 8g a day. Ginseng (only ever managed to feel good taking the Holland and Barrett brand. ) But as it causes me to become vulnerable to bacterial infections I wouldn't touch it now . So that might explain why I and seeing some symptoms go away?
Update: At 7pm began to crash, felt all my muscles siezing up across my body (this was 2 hours after the 125mg egcg dose, so it should still have been working at this point). I took a wild guess that it might be high levels of ROS because my muscles felt very stiff and leady, but also felt like the start of a crash where the energy would get pulled out after awhile. So I took glycine (evening dose) but added r-ala and my usual magnesium ascorbate. I took the glycine and the r-ala first and I could feel that rapidly lowering the tension and stiffness pretty quickly. It's 9pm now and my body stopped crashing about 7.30/8pm. Neck stiffness has gone as well. So seems like I just needed ROS management.
Egcg 125mg
No lion's mane
480mg reishi
No oat bran
Rest of protocol the same
As discussed for the hell of it I tried 325mg egcg in the am and at lunch. I still had dizziness while at this dose but it wasn't a major concern. In that I wasn't worried it was a sign of something bad. Not yet anyway.
As of this evening the dizziness was worse after taking the reishi extract. Which is kind of what I've noticed the whole 22 days but this time I took it 2 hours after everything else. So it could only be that that had the effect. My lymph nodes were thick and squidgy after this dose and returned to a normal size an hour or so later. So my immune system is still dumping something when taking the resihi extract. Again not surprising as over the last 3 years ive take all sorts of traditional remedies and noticed that.
So today was a success really. Unless I wake up crashed with very and fatigue in the morning - hoping not!! I'm still trusting that the gdh pathway is a common ME pathway. Which for all I know it might not be.
Today I drove for about an hour but all broken up, painted for half an hour, exerted myself at the higher limit of what's made me crash in the last 2 weeks, did some shopping. I only noticed dizziness and physical muscular fatigue at the end of the painting session + neck stiffness was a lot worse after painting.
But really if I crash badly in the morning this experiments pretty much been a failure. So we will see. Personally I'm confident I'll wake up with fatigue and feel a tad rough tomorrow morning. As I have almost every day recently.
So differences to pre protocol:
X PEM and fatigue does appear to be blocked for daily chores and work (not inc any exercise of any kind)
X mental clarity is better but only on a good day. On a bad day the neuro inflammation comes right back. Which makes you feel like your heads swimming all day.
X neck stiffness much better. Able to concentrate and have my neck at angles (think reading, or bent over doing a puzzle. That sort of thing) which wasn't possible before at all.
X can read out loud for periods without totally buggering up my voice box etc
X cranial cervical junction inflammation. Right in the centre just below be skull bone at the back has gone. I haven't felt this for a few days now maybe 4 days. It just seems to have totally lifted.
X Occipital swelling also seems to be gone
X able to go out each day if need be, usually tires me out but I can do this without feeling really sick and unwell post.
X ME sore throat feeling has gone.
X allergies might have improved but to be honest I won't really know if there true until Feb next year. Because my allergies are worse when tree pollen first goes into the air.
X chemical sensitives seem vastly improved. Not really sure this has anything to do with the protocol. But I can tolerate right guard anti perspirant again. I am in a very chemical free house though and suspect this has a lot to do with it.
X Ulcers (not had any for 22 days) and wound healing in the mouth is much better. The gylcine has been very sharp and acidic and even though this has sharpened my teeth i haven't had any oral complaints. Won't know if this has properly worked for a few months, but this was a very annoying symptom that used to drive me mad.
For contrast I did not feel this good last summer. Whilst summer used to make me feel better that all stopped 2 years ago when my body just seemed to become a lot worse and I didn't really improve in the summer months much.
History wise that's important for the reader: I've always felt better taking some traditional remedies in the right therapeutic dose. So Lauricidin at 9000mg a day. Andrographis at 8g a day. Ginseng (only ever managed to feel good taking the Holland and Barrett brand. ) But as it causes me to become vulnerable to bacterial infections I wouldn't touch it now . So that might explain why I and seeing some symptoms go away?
Update: At 7pm began to crash, felt all my muscles siezing up across my body (this was 2 hours after the 125mg egcg dose, so it should still have been working at this point). I took a wild guess that it might be high levels of ROS because my muscles felt very stiff and leady, but also felt like the start of a crash where the energy would get pulled out after awhile. So I took glycine (evening dose) but added r-ala and my usual magnesium ascorbate. I took the glycine and the r-ala first and I could feel that rapidly lowering the tension and stiffness pretty quickly. It's 9pm now and my body stopped crashing about 7.30/8pm. Neck stiffness has gone as well. So seems like I just needed ROS management.
