My ability to create makes an a appearance for short periods, little and far inbetween so this is result...
Poem by:
Sonja Steyn 11-1-11
We are fighting this on our own.
So few on our side, mostly us alone.
Even less to understand.
Who's to hold our hand.
No sympathy, guidance or change.
Every day's up and downs the same.
For 1 hour's function, many of none.
So much time lost so little won.
Sells of malfunction and dysfunction.
A brain of wool in my head
A hive of bees in my ears.
The vomiting I mostly fears.
Forever nausea all this years.
Burning in all extremities
My heart's a mess.
Missing and turning in my chest.
I can't breath not enough air.
No more energy to spare.
The sounds to loud, I'm going crazy.
My world altered, to small, foggy and hazy.
No more multitask, thinking careful,
why am I here, what did I do last.
The syndrome of unexplainable fatigue and isolation.
The syndrome of misunderstanding and humiliation.
The syndrome of endless pain and many years of suffering.
The syndrome of symptoms ever changing and accumulating.
Many bitter tears.
Many suffocating fears.
Many thoughts of giving up.
Many lonely years.
Many times I fell apart.
To much hours of utter desperation.
To many days in the pit of desolation.
As I stumbled trough this valley of darkness.
It was God whom strengthened my tired knees.
Encourage and kept me upright,in my weakness.
As the bleakness overwhelm and overtake me.
He kneeled at my side helped carry my cross.
His hand showed the way.
His love, and grace kept me going through the day.
He gave me his wisdom, he called me friend.
We walked in this suffering together,
My love for Him has no end.
Through my affinity and endless affliction.
I gave up the pleasures of this sad destroying world.
I lost myself my health my youth my friends,
But even as I lost my life I gained this my very soul.
The first years I lived in hope.
Then came the years filled with fear.
Then the understanding an excepting,
a Diffident kind of healing will come to me.
Please let the fighting stop, the bell ring.
I am bruised, battered and beaten.
Even death has lost it's darkness and sting.
And became my unreachable friend .
How I long for it's blessed mercy,
Peace love and light at the tunnel's end.
O dark night of my soul a endless journey.
How much further do I have to go?
How much more of this can I take?.
Only by the strength of my spirit.
am I crawling the last of this deserted way.
This chronic misunderstanding.
This miserable fatigue.
Forever stupid syndrome.
You gave me 24 years of intense suffering.
Robbed me blind and stripped me bare.
But as love is my witness and wisdom my name.
Through you I'f being taught meekness and compassion.
To preserve in patience and endure in pain.
So in the end my unfashionable malign friend.
On wings of a eagle will I fly,
I Will walk and never grow faint.
I Will run and never be weary.
With my body you will die.
Good buy, and may we never meet again!!
Poem by:
Sonja Steyn 11-1-11
We are fighting this on our own.
So few on our side, mostly us alone.
Even less to understand.
Who's to hold our hand.
No sympathy, guidance or change.
Every day's up and downs the same.
For 1 hour's function, many of none.
So much time lost so little won.
Sells of malfunction and dysfunction.
A brain of wool in my head
A hive of bees in my ears.
The vomiting I mostly fears.
Forever nausea all this years.
Burning in all extremities
My heart's a mess.
Missing and turning in my chest.
I can't breath not enough air.
No more energy to spare.
The sounds to loud, I'm going crazy.
My world altered, to small, foggy and hazy.
No more multitask, thinking careful,
why am I here, what did I do last.
The syndrome of unexplainable fatigue and isolation.
The syndrome of misunderstanding and humiliation.
The syndrome of endless pain and many years of suffering.
The syndrome of symptoms ever changing and accumulating.
Many bitter tears.
Many suffocating fears.
Many thoughts of giving up.
Many lonely years.
Many times I fell apart.
To much hours of utter desperation.
To many days in the pit of desolation.
As I stumbled trough this valley of darkness.
It was God whom strengthened my tired knees.
Encourage and kept me upright,in my weakness.
As the bleakness overwhelm and overtake me.
He kneeled at my side helped carry my cross.
His hand showed the way.
His love, and grace kept me going through the day.
He gave me his wisdom, he called me friend.
We walked in this suffering together,
My love for Him has no end.
Through my affinity and endless affliction.
I gave up the pleasures of this sad destroying world.
I lost myself my health my youth my friends,
But even as I lost my life I gained this my very soul.
The first years I lived in hope.
Then came the years filled with fear.
Then the understanding an excepting,
a Diffident kind of healing will come to me.
Please let the fighting stop, the bell ring.
I am bruised, battered and beaten.
Even death has lost it's darkness and sting.
And became my unreachable friend .
How I long for it's blessed mercy,
Peace love and light at the tunnel's end.
O dark night of my soul a endless journey.
How much further do I have to go?
How much more of this can I take?.
Only by the strength of my spirit.
am I crawling the last of this deserted way.
This chronic misunderstanding.
This miserable fatigue.
Forever stupid syndrome.
You gave me 24 years of intense suffering.
Robbed me blind and stripped me bare.
But as love is my witness and wisdom my name.
Through you I'f being taught meekness and compassion.
To preserve in patience and endure in pain.
So in the end my unfashionable malign friend.
On wings of a eagle will I fly,
I Will walk and never grow faint.
I Will run and never be weary.
With my body you will die.
Good buy, and may we never meet again!!