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Chronic Fatigue Syndrome Advisory Committee (CFSAC) May 10-11, 2011


Chronic Fatigue Syndrome Advisory Committee (CFSAC)

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services via the Assistant Secretary for Health of the U.S. Department of Health and Human Services on issues related to chronic fatigue syndrome (CFS). These include:
factors affecting access and care for persons with CFS;
the science and definition of CFS; and
broader public health, clinical, research and educational issues related to CFS.
Administrative and management support for CFSAC activities is provided by the Office of the Assistant Secretary for Health (OASH). However, staffing will continue to be provided primarily from the Office on Women's Health, which is part of OASH.
Dr. Wanda K. Jones, Principal Deputy Assistant Secretary for Health in OASH, will continue in her role as the Designated Federal Officer for CFSAC.

May 10-11, 2011 CFSAC Meeting

Contact Us
For further information, contact:
Chronic Fatigue Syndrome Advisory Committee (CFSAC)
Office of the Assistant Secretary for Health
U.S. Department of Health and Human Services
Hubert H. Humphrey Building, Room 712E
200 Independence Avenue SW.
Washington, DC 20201
(202) 690-7650 (Voice)
(202) 401-4005 (FAX)
cfsac@hhs.gov (Email)

Memo from Secretary Sebelius to Christopher Snell, CFSAC Chair, on the October 2010 Meeting http://www.hhs.gov/advcomcfs/sebelius_memo.pdf
Registration open for NIH SoK Workshop on ME/CFS Research, April 7-8, 2011 https://www.infinityconferences.com/...7557/Index.htm
MLV Gene Sequence Study - Questions and Answers http://www.fda.gov/BiologicsBloodVac.../ucm223232.htm
CFS and Blood Donation http://www.hhs.gov/advcomcfs/assocbull1003.pdf
CDC XMRV Overview http://www.cdc.gov/xmrv/index.html
XMRV Q&As http://www.cdc.gov/xmrv/questions-answers.html
Trans-NIH ME/CFS Research Working Group http://orwh.od.nih.gov/cfs.html WG at ME-CFS_Res_Wrkg_Grp@mail.nih.gov.
[Federal Register: March 22, 2011 (Volume 76, Number 55)]
[Page 15982]
From the Federal Register Online via GPO Access [wais.access.gpo.gov]



Meeting of the Chronic Fatigue Syndrome Advisory Committee

AGENCY: Department of Health and Human Services, Office of the
Secretary, Office of the Assistant Secretary for Health.

ACTION: Notice.


SUMMARY: As stipulated by the Federal Advisory Committee Act, the U.S.
Department of Health and Human Services is hereby giving notice that
the Chronic Fatigue Syndrome Advisory Committee (CFSAC) will hold a
meeting. The meeting will be open to the public.

DATES: The meeting will be held on Tuesday and Wednesday, May 10 and
11, 2011. The meeting will be held from 9 a.m. until 5 p.m. on May 10,
2011, and 9 a.m. until 4:30 p.m. on May 11, 2011.

ADDRESSES: Department of Health and Human Services; Room 800, Hubert H.
Humphrey Building; 200 Independence Avenue, SW., Washington, DC 20201.
For a map and directions to the Hubert H. Humphrey building, please
visit http://www.hhs.gov/about/hhhmap.html.

Secretary, Chronic Fatigue Syndrome Advisory Committee, Department of
Health and Human Services; 200 Independence Avenue, SW., Hubert
Humphrey Building, Room 712E; Washington, DC 20201. Please direct all
inquiries to cfsac@hhs.gov.

SUPPLEMENTARY INFORMATION: CFSAC was established on September 5, 2002.
The Committee shall advise and make recommendations to the Secretary,
through the Assistant Secretary for Health, on a broad range of topics
including (1) the current state of knowledge and research and the
relevant gaps in knowledge and research about the epidemiology,
etiologies, biomarkers and risk factors relating to CFS, and
identifying potential opportunities in these areas; (2) impact and
implications of current and proposed diagnosis and treatment methods
for CFS; (3) development and implementation of programs to inform the
public, health care professionals, and the biomedical academic and
research communities about CFS advances; and (4) partnering to improve
the quality of life of CFS patients.

The agenda for this meeting is being developed. The agenda will be
posted on the CFSAC Web site, http://www.hhs.gov/advcomcfs, when it is
finalized. The meeting will be broadcast over the Internet as a real-
time streaming video. It also will be recorded and archived for on
demand viewing through the CFSAC Web site.

Public attendance at the meeting is limited to space available.
Individuals must provide a government-issued photo ID for entry into
the building where the meeting is scheduled to be held. Those attending
the meeting will need to sign-in prior to entering the meeting room.
Individuals who plan to attend and need special assistance, such as
sign language interpretation or other reasonable accommodations, should
notify the designated contact person at cfsac@hhs.gov in advance.

Members of the public will have the opportunity to provide oral
testimony at the May 10-11, 2011, meeting if pre-registered.
Individuals who wish to address the Committee during the public comment
session must pre-register by Monday, April 18, 2011, via e-mail to
cfsac@hhs.gov. Time slots for public comment will be available on a
first-come, first-served basis and will be limited to five minutes per
speaker; no exceptions will be made. Individuals registering for public
comment should submit a copy of their oral testimony in advance to
cfsac@hhs.gov, prior to the close of business on Monday, April 18,

If you do not submit your written testimony by the close of
business Monday, April 18, 2011, you may bring a copy to the meeting
and present it to a CFSAC Support Team staff member. Your testimony
will be included in a notebook available for viewing by the public on a
table at the back of the meeting room.

Members of the public not providing public comment at the meeting
who wish to have printed material distributed to CFSAC members for
review should submit, at a minimum, one copy of the material to the
Executive Secretary, at cfsac@hhs.gov, prior to close of business on
Monday, April 18, 2011. Submissions are limited to five typewritten
pages. If you wish to remain anonymous, please notify the CFSAC support
team upon submission of your materials to cfsac@hhs.gov.

All testimony and printed material submitted for the meeting are
part of the official meeting record and will be uploaded to the CFSAC
Web site and made available for public inspection. Testimony and
materials submitted should not include any sensitive personal
information, such as a person's social security number; date of birth;
driver's license number, State identification number or foreign country
equivalent; passport number; financial account number; or credit or
debit card number. Sensitive health information, such as medical
records or other individually identifiable health information, or any
non-public corporate or trade association information, such as trade
secrets or other proprietary information also should be excluded from
any materials submitted.

Dated: March 18, 2011.
Wanda K. Jones,
Executive Secretary, Chronic Fatigue Syndrome Advisory Committee.
[FR Doc. 2011-6702 Filed 3-21-11; 8:45 am]


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