I am a CFS/ICL/Non-HIV AIDS patient.
I remain infuriated by my government's betrayal of her people. Most CFS patients believe that their government has their best interest at heart, and sadly that is entirely untrue. So, to a lesser extent, I remain bothered that CFS patients' do not question authority and demand action of their employees. The government works for us...not vice versa!
I think it's great that CFS patients like to chit-chat amongst themselves in web forums. But, CFS is not science. A syndrome is a syndrome, not a disease. CFS is 100% a political paradigm, and in order to make any progress with CFS research "getting political" is the only solution.
To this day, from my bed, I continue to write at least 12 letters per day. Here are some examples of responses that I've received over the years: http://cfsstraighttalk.blogspot.com/2005/07/few-highlights-of-my-plight.html In my healthier days, I was traveling all over the world working with scientists, and the doorways kept opening for me.
I can only imagine the profound possibilities of what would happen if every CFS patient started writing 3 letters per day.
U.S. representatives can be found here:
http://www.senate.gov/general/contact_information/senators_cfm.cfm
http://www.house.gov/house/MemberWWW.shtml
http://www.whitehouse.gov/contact/
Anger + Action = Activism
www.cfsstraighttalk.blogspot.com
I remain infuriated by my government's betrayal of her people. Most CFS patients believe that their government has their best interest at heart, and sadly that is entirely untrue. So, to a lesser extent, I remain bothered that CFS patients' do not question authority and demand action of their employees. The government works for us...not vice versa!
I think it's great that CFS patients like to chit-chat amongst themselves in web forums. But, CFS is not science. A syndrome is a syndrome, not a disease. CFS is 100% a political paradigm, and in order to make any progress with CFS research "getting political" is the only solution.
To this day, from my bed, I continue to write at least 12 letters per day. Here are some examples of responses that I've received over the years: http://cfsstraighttalk.blogspot.com/2005/07/few-highlights-of-my-plight.html In my healthier days, I was traveling all over the world working with scientists, and the doorways kept opening for me.
I can only imagine the profound possibilities of what would happen if every CFS patient started writing 3 letters per day.
U.S. representatives can be found here:
http://www.senate.gov/general/contact_information/senators_cfm.cfm
http://www.house.gov/house/MemberWWW.shtml
http://www.whitehouse.gov/contact/
Anger + Action = Activism
www.cfsstraighttalk.blogspot.com