SallyQ;160536 said: Have to change drastically to even advocate for us. They remain in the dark. Click to expand...
justinreilly Feb 27, 2011 Not the most insightful blogpost i've ever read, but it gets right to the point; a very valid point. can't argue with that.
Not the most insightful blogpost i've ever read, but it gets right to the point; a very valid point. can't argue with that.
garcia Feb 28, 2011 I agree 100% Sally. The situation is beyond ludicrous. Unfortunately I fear the CAA is poised to rebrand itself as a "research organization" so it doesn't have to deal with us pesky patients.
I agree 100% Sally. The situation is beyond ludicrous. Unfortunately I fear the CAA is poised to rebrand itself as a "research organization" so it doesn't have to deal with us pesky patients.
raven Feb 28, 2011 If you don't support the CAA's "advocacy," here's another petition to let them know. They're aiming for 1000 signatures. http://www.change.org/petitions/pet...ica-as-our-advocacy-representative#signatures
If you don't support the CAA's "advocacy," here's another petition to let them know. They're aiming for 1000 signatures. http://www.change.org/petitions/pet...ica-as-our-advocacy-representative#signatures