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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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taniaaust1
- Author taniaaust1
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I wonder how many with ME end up insane due to all the trauma they go throu (or a virus attacking the brain?). Im not only physically and emotionally weak at times, Im nowdays mentally weak too. It's like Ive been pushed to far over an edge.. and my coping mechanisms to stress are nowdays...
The past year or two my CFS/ME has been strange (by strange i mean different to how i hear it affecting others). Most of the time i can be completely symptom free if i avoid physical activities eg just sit in a chair all day and dont move except type.
When i do start to over do things...
I've just cut and pasted this post of mine from another CFS site online, its several years old.
The start of the CFS
- I was a single parent of two young girls, one who is disabled (she's got a problem like spina bifia). Doing my second full time year at Naturopathy collage. I kept...
I said i would some time put an indepth post here about the CFS/ME symptoms i've experienced, so just found one of my old posts at another site from some years ago to put here, i have updated it a touch.
I first got CFS/ME in 1997 when 26/27 yrs.
My CFS is of the ME variety and was slow...
Someone asked me what things Ive tried treatment wise so I thought I'd post my answer here. I know Im probably going to miss a lot of things Ive tried so will have to add them in later.
The treatment ive tried has just been in terms of helping symptoms.
B12 injections twice weekly have...
That is what im feeling like right now, like Ive been kicked by a horse in the thigh for doing gardening yesterday. (i did manage 75 mins of gardening with squatting yesterday till i was feeling sore all over and almost fell down onto my injured shoulder cause i was unable to keep my balance...
I posted this at a thread but thought i would be good to put in a blog. (I've broke it down to one more stage)
As far as stages go with CFS, my case has certain had various stages. I could break it down to 5 quite distinct stages I went throu
Stage one.. very flu like and on and off...
This isnt going to be all that interesting post but i just wanted to keep track of what was going on for me as far as medical stuff goes. I will at some point probably soon do a post on how my CFS/ME started 13 yrs ago and all the over 80 symptoms ive had with this illness.
My CFS is very...