Seven (formerly lnester7)

So mentally my situation is the following: I was raised that pain is personal and when you are sick you suck it up and keep going. So, that did not work well for me in the first 5 years of CFS so I decided to change. I am wondering what level of detail is necessary for family and friends to...
Seven7
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336
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So I stopped blogging because I figure the Blog is public. What a dilemma. These are very embarrassing thoughts and personal feelings, I don't mind helping here and exposing myself after all the things that we share with each other. I am just not sure I am ready to open that to the world. But...
Seven7
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So today I woke up better, didn't sleep well again but for some reason I felt better. I put ice first thing in the morning on my head. Ha! those that thought it was not possible to discover something better than coke!! Ice on head is a godsend!! Like I was feeling like a normal person, human...
Seven7
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So I had another horrible night of sleep. I was miserable when I woke up and had that burning again. I put ice and felt better. Got out of bed finally about 9:30am. I had a Sleep Lynk and apparently my oxygen is bad while I sleep and have mild apnea again. So the dental appliance is not longer...
Seven7
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So today was... How to even describe it, I have been in all the sides of the spectrum of the mood scale. For starters, I didn't sleep, not sure why I was having PEM so intense, so I stopped fighting it and got out of bed at 4am. I got this burning and buzz in head that was horrible. I was so...
Seven7
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This whole disability business is more challenging than expected. That your world comes to a stand still, doesn't mean it stops for everybody else. I am trying to be good and rest aggressively but just running a house is a full time job by itself. The lady who clean my house cant make it this...
Seven7
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285
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Why does everything have to be sooo hard w this disease! I was taking a bath and felt miserable. I used to enjoy baths, It was one of the top 10 things in life that made me happy.I mean really happy, I could feel completely at peace and blissful with baths. I got HR in 125 to 130 during the...
Seven7
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Last night I was asked to wear the sleep apnea Link test (that measures the oxygen levels) so I did not sleep well. So I decided to try detox bath for the first time. I used 1 pound Epsom salt, 1 pound Baking Soda and 1t of Ginger. I was suppose to be in for 40min. Well I am one of those...
Seven7
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My visit to Dr Rey was kinda bad because I was doing the treatment wrong, I was doing half the dose of the imunovir, so not much progress was been made. Now I started the right Doses and not having any additional side effects. I was told to Drink water and water and more water, that was...
Seven7
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Viral reactivation: ParvoVirus, Coaksakie, Roseola. b cells results: 21 Range: 8-18 High NK CD3-CD56+ results:1.27 Range: 5-16 Low CD5+ results:67 Range: 68-82...
Seven7
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I got Sick 5 Years ago, not sure how I got sick, I think it was gradual onset and cannot remember exactly how or when. Main symptoms: FATIGUE (this was the only main symptom for the first 2 years). PEM or post exhortation malaise. Muscle pain and join pains. Flu like malaise. heart pain...
Seven7
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162
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1

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Seven7
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