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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Seanko
- Author Seanko
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With the CMRC conference taking place in Newcastle, it has brought back quite a few memories from the my days as a student there. So hearing about the research of Prof Julia Newton makes makes me proud to be have an alumnus of that great university.
I studied at the University from 1988 to...
We have not had much of a summer in Southern England this year, just a lot of greyness and chilliness. With August departing the nights have getting progressively longer at an accelerating rate.
Last week, I recognised that I had became increasingly sleepy. The hormone flows which affect your...
You are going through a good period, starting to make plans for the coming days and beginning to do a bit more each day...then wham...the relapse.
Happened recently again after going to the Tolpuddle Martyrs' Festival in July, felt good, did not do too much. Was tired the next day as expected...
Sometimes on Twitter whilst browsing profiles you come across people who describes themselves as ME/CFS advocates.
I have become wary of people describing themselves as such as it is as often signpost for pursuing obsessive, unhealthy vendettas & feuds. They want to constantly re-fight the...