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RUkiddingME

RUkiddingME
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Hello gang, My apologies for not updating my blog in such a long time. There has been some very good and not so good times and I just didn't quite know what to make of it... Still don't lol. As I promised with this Valcyte blog is that I would write about the good, the bad, and the ugly and...
RUkiddingME
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First of all I could just cry because I wrote this huge update, my battery died and lost the entire entry. Oh well what's done is done. I will try to remember most of what I had typed. My short term memory is the absolute pits. Long overdue update... The first month of Round two went well...
RUkiddingME
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Hey guys just a very brief update. I originally started Valcyte January of 2013. My doctor origininally didn't want me on it for more than 6 months but since I tolerated it so well, I was able to stay on it for a total of 15 months which brought me to April 2014. I have to say that between...
RUkiddingME
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Sorry I am way overdue for an update. Late in the Fall 2013, I noticed a deterioration and was not doing as well as I was during the summer. I slowly kept getting worse to the point where I was bedridden most of January and February. I couldn’t understand as I have never heard of someone...
RUkiddingME
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Hello gang, Well, as I had hoped I am driving again!!! :thumbsup: My hubby got me a used little car to get around in and I only drive on good days. I can't explain how it feels after three long years!! Tonight I even drove to our local grocery store and was easily able to walk the produce...
RUkiddingME
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Week 34:thumbsup: Well guys you guessed right! I haven't been updating my blog because I am too busy living, what a feeling!!! Having been stuck in a house for 3 years, unable to do anything, the majority of the time being mostly bedridden and unable to look after myself, this improvement...
RUkiddingME
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Hello Gang; Sorry I haven’t posted any updates lately. I think I was waiting to see if there would be more change in my improvement, I also wanted to wait to receive all my lab results. I am still doing really good on the Valcyte with no side-effects whatsoever. I went from being bed ridden 90%...
RUkiddingME
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Hi gang; I just typed a real long update and deleted it by mistake so I’ll try to remember what I wrote. I have been delaying posting an update in case I would jinx my miraculous progress but I think it’s safe to say that VALCYTE IS WORKING!!!!! RECAP: Week 1-6 no side-effects, no...
RUkiddingME
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Hey gang, just a quick update. I have been completely bed ridden and not doing well at all for 6 weeks. Not seeing an end in site. I'm leaving for vacation on Sat morning. Wish me luck because I have no idea how I'm going to pull that off. I am still hoping for a miracle.
RUkiddingME
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Hello gang: I am still tolerating the Valcyte itself very well. My labs remain completely normal. Week 5, 6 was more of my usual ;able to get downstairs in my house a few hours a week and a couple of short outings outside the house (quiet meal/medical appointment). I did have a few short dizzy...
RUkiddingME
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Hello Gang; I can't believe I've already been on Valcyte for one month. I am now down to 900 mg once daily (with meal) and still having no problems. Sometimes I wonder if the pharmacist messed up and gave me suger pills because I'm tolerating this way better than I ever dreamed of...
RUkiddingME
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Hello Gang: I'm thrilled to report that there is nothing to report!!! I'm on day 17 on the loading dose of Valcyte 900 mg twice a day and I have not had any problems whatsoever. I just got the results of my weekly blood work and EVERYTHING is NORMAL!!! Even my Lipase level that was quite...
RUkiddingME
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Hello gang; I have been on Valcyte for a week and so far so good. I have had no side-effects whatsoever from the medication so far. I did go for my first weekly blood work yesterday and just got a call from my doctor's office asking if I was having abdominal pains because my Lipase level is...
RUkiddingME
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I am finally on Valcyte and will be blogging my experience on this site, good or bad Here's a little bit about ME I am 44 years old. I have had CFS for more than 3 years. Before I became ill I had a life that was amazing in all aspects, family, work, social life and health. I had a great...

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RUkiddingME
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