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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Quilp
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Dear Simon
I have made a decision, and one which I am sure will meet with your approval. I am to make that journey – on HMS PACE no less, making my way to the promised land, alighting at good health before meandering aimlessly along career path before marriage, two kids and a divorce come to...
Try as I might and that is often, I always seem to miss. An outstretched hand that never quite reaches its target, as life passes me by again.
I want to scream out and tell them I wasn’t ready, that I want to start again. But they say time, like an arrow goes only one way.
Every day I reach...
I have said ‘’no thank you’’ more times than anyone could remember. I do not know why I said yes on this occasion. To be invited out by someone I had once known so well, so long ago, felt like life had stopped by and offered me a lift. That in some small way I was still, if not loved, then...
One roll of Sir Wessely wallpaper.
Very simply you wake up each morning and there he is, staring right back at you. Your very own therapist for just 60p a roll. Some have even plastered him on their ceilings to see if he moves when the earth does.
Warning, some men have complained of premature...
You meet them in the most obvious of places, and yet it never crosses your mind ( after over twenty one years anyway ) that you might meet anyone you once knew until of course, it’s too late; then it was, you conclude, inevitable all along.
We studied the same course at University, and given...
Reflecting on what is happening to me isn't easy. I hear of people telling me that there are far worse things that happen in life to other people. That is surely true, but implicit in their argument is that I should perhaps attract some comfort from the fact that others are worse off than me...
Turn off radio 4 after hearing Esther Crawley. A serious life threatening illness reduced to treatment via skype. The woman needs help......
Sit in the dark a while until I can be sure she’s gone.
Log onto the BBC website......’’Chronic Fatigue Syndrome cured by Graded Exercise Therapy.....’’...
Judge Solomon : Next. Can we have the defending counsel Bill Bribery representing Sir Simon Perjury
against prosecuting counsel Quilp representing Phoenix Rising. All Rise……..
Quilp : Ladies and Gentlemen of the jury an independent review carried out by Lord Malpractice has shown that the...
I lost the twenty pound note in my pocket, the one that I had opened, closed, opened again, folded and creased. I couldn’t leave anything to chance. In my right pocket, reserved only for this note, I sank my fingers over and over again that morning.
I was being served at the head of a long...
I have always been the same; the phone rings and I have I answer it.
Although rapid over six yards, the result is rarely pretty. A grown man wearing just one sock and his boxer shorts around his ankles, now breathing heavily and spitting out the word, ‘’hello’’.
There usually follows a pause...
It’s a feeling that comes from nowhere, but washes over you like a tsunami.
The reality that I might have to live like this for the rest of my life takes my breath away; the closest I’ll ever come to a living nightmare.
And like fuel poured onto a raging fire, I cannot control my emotions...
‘’Bejesus Mary, there’s a shaggy Himalayan Yeti making his way down your garden path.’’
That is Mrs Parker my neighbour, belting out her concerns on the dividing walls of our Victorian Terrace.
I took a quick look out of my window and saw that what she thought was a Yeti, was in fact my Graded...
Recent advances in CBT have led to a remarkable series of stories from those whose life has changed.
We hear from one gentleman who talks about how his life was changed the day he met the enigma that is Cognitive Behavioural Therapy.
Hi my name is Wayne. My baldness began when I was born, and...
Perhaps it’s the one question most of us would like answered - Does God exist ?
Sir Isaac Newton spent ten years locked away in his house looking through the Old and New Testaments for a hidden code. He was convinced that the bigger picture, the word of God, was to be found here. More telling...
It was 2002, all asleep, and I awake, that I decided it was time.
I cannot tell you how long that feeling lasted, but it was characterised by an intense loneliness that is beyond all hope, and yet in my life I never felt such peace.
I don’t know what brought me back. The thought of my mother...
Lost in translation
I cannot let it go, even after more than two years…..
A doctor, appointed to come and assess my medical condition said I ‘’sat comfortably on his bed for thirty minutes’’. A perfectly innocuous statement you might conclude - until you consider that he was only in my house...
Finding myself in the unexpected company of two Neanderthals I assumed that the ‘’what do you do for a living ?’’ was unlikely to be thrown in my direction. Indeed I had more confidence in going down to my local job centre wearing Homer Simpson’s string vest and an anti-fungal thong with a...