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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Protocol for ME/CFS induced by herpes veridai viruses

godlovesatrier
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Running a little late today so I will be brief. Slept ok, although ended up tossing and turning a tad. I was a bit tachycardic in the night and before bed, that was probably the issue. Didn't wake up with muscle fatigue which was pretty good! But woke up pretty tired on the whole. All in...
godlovesatrier
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Started to crash tonight after exertion from today. Very slow gradual crash but it's like the energy is being sucked out of my cells as it happens. EGCG doesn't really seem to be blocking this, although I think it is having an effect on blood vessel dilation potentially, I haven't googled it...
godlovesatrier
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Feeling a lot more energised lately and definitely a lot less inflammation right at the back of my skull where it joins my spine. But also feel a little hyper and have loads of energy, which is only sustainable I expect if I can continue to get 9 hours sleep every night. It seems overnight...
godlovesatrier
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Slept a lot better last night. Sore throats much better but still a tad hoarse. Fatigue is much better as well. No night sweats apart from very briefly which may have been me over heating. Still taking melatonin and 1000mg 5-htp before bed. This really calms me down so I can sleep. Even though...
godlovesatrier
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As I said woke up fairly rough thismorning. Throat still very horse, but other than that had a really productive day. Brain feels like it's turned up to 150% though which isn't very good really as it means sleep is going to be tricky tonight. The night sweats from last night are bothering me...
Expected to sleep initially but didn't. Ended up with night sweats which I haven't had for 2 years and woke up with very bad sore throat, bad fatigue in the legs and feeling quite exhausted. My baseline overall seems to just be getting worse. Which is further placing pressure on my body in...
godlovesatrier
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So as I said the last few days I added the egcg back in again using the old brand I first bought as this appeared to be tolerable. However I suffered from PEM again last night at the 25mg egcg dose, so obviously this does didn't block PEM. Therefore I raised it to 75mg EGCG so I can try again...
Crashed a little last night but not as severely as last week. Woke up with sore throat, PEM, muscle fatigue, dizziness and that feeling of pain you get when your body isn't quite done crashing. All in all I feel like my maximum energy envelope is smaller now than it was pre protocol. I did...
godlovesatrier
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Nausea seems to be all but gone now. But did seem to be worse after the reishi/lions mane, so it would make more sense that the egcg must have been more potent in the life extension form and when combined together it promoted a bolder immune response which ultimately just made us feel so...
godlovesatrier
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Haven't taken the reishi or lion's mane yet. Feeling very sick. I've also got a temperature. Just sincerely praying this isn't a bloody bacterial infection as my body cannot get rid of them!! Funnily enough my ME symptoms don't seem to be quite as bad currently. That or my lactate levels are...
godlovesatrier
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Slept ok but did wake up again at 4am. Eventually dosed back off. Then woke up at 8am pretty much wide awake. While this might sound good it's not. My body tends to get very light sleep but over the last 2 years I've noticed a direct correlation between infections and over stimulation of the...
So after having a very unpleasant day and slowly testing everything I'm taking by process of elimination first of all I took out the r-ala fairly convinced that was the issue. But that didn't help. So this time I took out the egcg and I've got no nausea at all. I just feel dizzy and like I'm...
Very unpleasant day today. Felt very queasy after my first dose but pushed through. Then vomited 3 times about 11am. After eating lunch about 12.30 I felt normal again. Didn't take my next dose until 2 but removed the r-ala and the oat bran. The glycine and nac went down without an issue no...
godlovesatrier
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So even though it says day 11 everything didn't arrive and wasn't in the correct brand types until Day 4. So I think it's safe to say really I've only been doing the protocol for 7 days in total. I haven't included all the b vitamins either, just thiamine and b6, as I respond really well to...
godlovesatrier
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Slept very badly last night. I woke up about 4am and that was it I was basically awake. I probably stayed away for 30 minutes and then weirdly seemed to get back to sleep again. Even so waking up at that time isn't the best. I've noticed that since I went on the protocol I can't sleep with my...
I feel very different today, didn't fall asleep at 2pm and still awake at 5pm, so much better than the last 3-4 days. The problem is I took a tiny amount of b12 transdermally - literally dabbed at it and worked it into my chest and now I haven't really had any immune activation type symptoms...
Slept pretty well last night but I took a small amount of b12 about 4pm and ended up fairly wide awake before bed, so had to take nytol, 5-htp and melatonin to sleep. As it was ended up waking up every few hours. Also my sore throat came back in the night, probably because I wasn't getting REM...
godlovesatrier
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I feel really good today, I woke up feeling brighter - that's the only way I can really describe it. Maybe it's because I slept properly for the first time in months? Even though I took melatonin and 5-htp I don't think that is what made me feel good after waking up. I did wake up very tired...
godlovesatrier
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Got into bed at about 7.30 last night as I was just exhausted. This was after exertion and felt like an immune response on the whole, although it is very difficult to actually tell the two apart. All I know is I woke up thismorning without any muscle fatigue but still suffering in terms of the...
godlovesatrier
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Quick update few things I definitely missed! I started having a small uptick of energy yesterday. It seems to have continued today but post exertion I'm just totally exhausted and practically fell asleep. Also my breathing isn't great. But my sore throat is still pretty much gone. Which I take...

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godlovesatrier
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