• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

muffin

muffin
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Posted By: Tina Tidmore via Muffin Win up to $400 in the ME/CFS Awareness Day Video PSA Contest From their beds and wheelchairs, many patients worked together to place the first-ever ME/CFS ad in The Washington Post. Now its time to tackle a media ad on a grander scale; video. We would...
muffin
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Report of Patient Donations & Expenses: MCWPA Fundraising (Posted by Muffin on behalf of MCWPA Fundraising Team Leader, Karen Ravitz. Note the Facebook Causes site makes our fundraising efforts transparent to all). We are pleased to announce that we have received enough donations to issue a...
muffin
7 min read
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Please copy and past the Press Release below written by Tina Tidmore that discusses the Retroviroloy study that found XMRV in various organs of monkey organs. The Retrovirus left the blood in days but found its way into several organs. This study must be used to counter the very DEADLY Lancet...
muffin
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329
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Continued News Coverage for ME/CFS Worldwide Patient Alliance (MCWPA) Posted by Tina Marie Miller Tidmore on 11 February 2011 -http://apps.facebook.com/causes/posts/655997?m=9ac39973 As a result of a patient sending a copy of The Washington Post ad to the Indiana Star, a reporter wrote...
muffin
1 min read
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by Tina Marie Miller Tidmore on 31 January 2011 ( The ME/CFS Worldwide Patient Alliance - MCWPA) New Congressmen have settled into office, but they do not realize there is a health threat that deserves more government funding. So let's tell them. The previous fax campaign was successful in...
muffin
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Well written, concise and targetted letter/petition - please sign. Hit link below. http://health.change.org/petitions/view/tell_cdc_to_change_their_mecfs_research 191 sigs at 11am est - 25 Jan - Goal is now 500. We can hit this goal within another two days or so. The petiton was such a...
muffin
2 min read
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From the ME/CFS Worldwide Patient Allliance (MCWPA) - Donate 50 - Get a Piece of ME/CFS History www.mcwpa.org or http://www.causes.com/causes/511536?m=f042604e On December 6, 2010, ME/CFS patients worldwide made history with the publication of the Virus ad in the Washington Post. It is...
muffin
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397
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[MCWPA Supports Bloggerama Day Posted by Tina Marie Miller Tidmore on Thursday 20 January 2011 The MCWPA coordinators encourage all ME/CFS patients to participate in the XMRV Bloggerama Day. Who: You and patients all over the globeWhat: Create a blog (simple) and post on other blogs...
muffin
1 min read
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Time for more Action ME/CFS Worldwide Patient Alliance (MCWPA) - We are Back! Posted on Monday, January 17 - Deadline is Sunday, January 23 EST We are getting ready for more action. Since MCWPA is patient-driven, we are asking you to tell us what is important to you, what you want us to...
muffin
2 min read
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We did it! We got that 1/2 page Ad out into the Washington Post and do believe that that AD gave the Federal health organziation heads and policy makers a rather big shake up. We are seeing changes for the positive and we are being treated differently - more respect and not being ignored. I...
muffin
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Chronic Fatigue SyndromePatients Run First-ever Ad in The Washington Post --Possible New HIV-like Retrovirus in Blood Supply http://www.prnewswire.com/news-releases/chronic-fatigue-syndrome-patients-run-first-ever-ad-in-the-washington-post-111363234.html CORAL GABLES, Fla., Dec. 6...
muffin
2 min read
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377
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Ad Winner, Publication Monday Posted by tina on December 5th, 2010 at 4:12 am WASHINGTON POST AD WINNER IS THE VIRUS AD - IN WASHINGTON POST ON MONDAY 6 DECEMBER 2010 We have much pleasure in announcing that the Virus Ad will go forward for publication in The Washington Post. It will...
muffin
1 min read
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332
User Blogs
http://mcwpa.org/ We have hit the magic number and our Angel donor is sending off the money for the matching $1,000. Thank you all for donating and joining! Please!!! Continue to join, get friends to join, and donate if possible. We must continue with this major media campaign and keep up...
muffin
1 min read
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422
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1
User Blogs
Time to Vote for Ad for ME/CFS Worldwide Patient Alliance (MCWPA) Posted at 10:58am on Tuesday, 23 November 2010. It's time to vote for your favorite Ad. Go here to see instructions and copies of the ads: http://mcwpa.org/2010/11/ads-ready-fo... If you have problems with access to...

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