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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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MeSci
- Author MeSci
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Health Notes 2.10.04-29.12.04
2.10.04
Bad night last night - polyuria both on trying to get to sleep first time & trying to get back to sleep c 0430. Took a Desmotab each time. Successful first time, less so second time. Must have got up at least 10 times. Had had relatively restrained...
2.1.04
Legs aching badly. Quite a lot of exertion yesterday due to T (cat) weeing on bed.
My nails (fingernails anyway) seem to be growing fast again - they had apparently slowed down in the past year or so. Due to candida? Slime again a.m.
5.1.04
Weight seems to be creeping back up - a...
This is the only diary I can find for this year.
22.10.03
Attack of urinary frequency early pm, shortly after rather windy & difficult small defecation. Had a bit of trouble holding on while at vets' surgery.
23.10.03
IBS-type lower abdominal discomfort all morning. Wonder if this is because...
from 'saved' files (after computer crash):
CFS Study Appendix Feb2011.PDF
Manual for 'specialist' care (words fail me).pdf
pacing GET and CBT study Feb2011.PDF
I am creating a link here to my Wordpress blog, which I haven't contributed to lately:
https://illanddesperate.wordpress.com/
Hope it will prove useful to someone!
This is the year that I went downhill seriously, and was admitted to hospital on 12.3.16, coming home on the 18th.
Abbreviations used in this section (apart from those I can't figure out)
Abbreviations
abd - abdomen
AMRPHS - amorphous
B - burning? Think so
BLD - blood
BP - blood pressure...
(I am sure you can excuse the errors. I don't think I received any reply.)
Dear AfME,
I am just skim-read your article about the PACE study on page 4 of the Spring issue of InterAction, and hope that your scientists will be producing a detailed critique of the study.
A very quick look at the...
2.1.02 No craving for g & t this evening or yesterday. Quite tired, achey & lethargic (but not depressed). Also not hungry enough to need late evening meal.
Lack of such craving & hunger is unusual.
Bit of slime. Had yellow discharge before (for c 1-2 wks).
Did have 1 g & t & a modest...
gp = groin pain
1.1.01 Persistent mildish headache which went after paracetamol p.m. Had c4 g & ts last night.
Right side pain gone, although perhaps just perceptible at times. Think this is first pain-free day since it started around 5th Dec. It had been quite sharp sometimes, deterring...
1.1.00 V. vivid & copious dreams for about a week. Include ‘insecurity’ dreams where home is invaded by people who claim it is their home, & one becomes a tenant, with loss of control over life.
3.1.00 Following 2 days of diarrhoea, headache & morning catarrh, had no headache or diarrhoea...
NB ‘gp’ = groin pain
1.1.99 Occasional mild rectal aching - wave-like, so poss. peristaltic.
After squeezing hair dry for a few mins after washing it, it took several seconds to open hand out again.
Ache at back of knees quite often.
Wonder if this greater fatigue is due to Xmas excess...
1.1.97 Hand hurting, also arm a bit, after writing a letter of just 2 sides of A5.
Heavy sweats despite v. cold weather. Otherwise quite well until about 2030, then spasmodic & fairly bad g.p. & wind. Accompanying perceptual disturbances, as often have.
2.1.97 Sweating for long time...
Account of suicide attempt in 1996, when still hadn’t realised that had a genuine illness (M.E.)
by V P
I wasn’t 100% sure, but sure enough - today was a good day to do it. I’d dragged myself through most of another day just like the others, a day of no pleasure, no motivation, no confidence...
Have typed info to here (I think) in piece on Phoenix Rising called ‘My early symptoms and results of 1995 step-exercise test’
By end of this period I still did not know that I had M.E. and had to rest.
NB those who want to avoid reading about suicide attempt should avoid section dated...
This is a just a very brief summary of what I have found since getting ME with regard to the relationships between diet, supplements, exertion and being 'in shape' - or not!
During a period of increased stress (and maybe exertion?) I put on a LOT of weight and became borderline-obese. As the...
Only time for a very quick summary, but I have come to the conclusion that PEM is almost entirely due to lactic acid/lactate and its downstream effects, at least for myself. Trying to reduce inflammatory cytokines didn't work.
The high lactic acid/lactate levels arise due to our...
This continues my theme on the pointlessness of animal 'models' for human conditions.
I repeat my general point, based on evidence, that on average an animal 'model' will give an answer relevant to humans about 50% of the time.
There is no way to know, after an animal study, whether you have...
Having noticed a recent drop in mood accompanying PEM-type symptoms after a fairly-strenuous day, I have been trying to figure out why, and thought it might be of interest to others if I put my thoughts down here.
As usual, I have pulled together bits of info I have already gleaned which may...
More detail added 19.11.15
I would welcome comments on this (the summer school step test results). It is a long time since I was at this summer school and I am pretty rusty on what the findings might mean.
BTW it's just occurred to me that US numerical date notation is different from that in...
This follows from my previous post about anti-inflammatories perhaps combating PEM and preventing mineral deficiency and polyuria/dehydration.
There are other natural anti-inflammatories such as omega-3 and alpha-lipoic acid, but I'm already taking these (upped my dose of the former last night...