merylg

"I acknowledge you have been seeking answers for more than 15 yrs" ......Prof "I don't think you have a Mitochondrial Disease, but we've been wrong before"......Prof "I'm going to run some tests" .....Prof "Ring me if you have any concerns".....Mito Clinic nurse "Your ear canals are the...
merylg
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:Retro eek: Been having an unpleasant photosensitivity & ?anaphylactoid/anaphylaxis reaction last night & today. Skin on arms/face warm & flushed, stomach & oesophagus eroding (only way to describe it...if you've ever experienced an ulcer you will know the feeling!!!) I also had breathing...
merylg
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:cheshire: Well this week I had my abdominal ultrasound one day & my gastroscopy the next! The gastroscopy showed a couple of slight stomach erosions. Some biopsies were taken. Since I can't take most meds, & even the Carafate (Sucralfate) made the pain worse, I am left with over-the-counter...
merylg
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Saw my friendly Gastroenterologist today. Advised I keep taking Carafate (Sucralfate), but only twice a day, for about 6 weeks...(seeing as I don't tolerate things like Nexium, Pariet & even Zantac). He's given me a request for an Ultrasound of my Upper Abdomen. Clinical Notes: Mildly elevated...
merylg
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I just found a bizarre collection of Environmental Risk Factors for the onset of Inflammatory Arthritis, in this case Psoriatic arthritis (PsA) in Psoriasis patients: 1) Rubella vaccination :Retro eek: 2) Injury sufficient to require a medical consultation :Retro confused: 3) Recurrent...
merylg
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Well it took two days for the lactic acid to clear from my leg muscles after doing some walking on Saturday...and an extra day for the sunburn to settle :Sign eek: I seem extremely sun-sensitive now...more so than I used to be...hmm like a Lupus patient only I test Negative. Saw my GP...
merylg
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I've decided to blog here for therapy :scared: Thank goodness I know I'm amongst friends :winking: Bit of background...long term ME/CFS, FM, MCS & degenerative disc disease. More recently flares of severe cervical spine pain thought to be sero-negative spondyloarthropathy ?Psoriatic...
merylg
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merylg
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