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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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meandthecat
- Author meandthecat
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Evocative phrase, provocative in the ways, it challenges power, power of entitlement, the imperial power that with the stroke of a pen disenfranchises populations and makes beggars of them.
Are we refugees because of illness or the response of those with the power to support our cause who...
When I got sick I lost my physical ability first and then mentally I declined. As I lost energy, intellect and memory so my world contracted until placing one foot in front of the other was about all I could do. I lived at the lowest level, I existed in a fugue state with sensation, mostly...
About a year after the extreme virus that marks what I think of as the beginning of this illness I was labelled with CFS by a professor of Rheumatology at the Mineral hospital in Bath. It felt like second best as he really wanted to show FM, but I didn't hurt enough, then. I guess he was out of...
Things we think we know; assuming we are the fixed point and that the knowing is subject to change.
But what if.........
This disease, this way of being takes us to places most people don’t go, might never go; why would you if you had a choice.
For me the worst experience was of a cognitive...