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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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matsli
- Author matsli
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Today, there is no cure for ME
The cause of ME is not established. There are indications that ME can be composed of different subgroups. However, there are some clinical studies and anecdotal stories that have shown more or less good results for patients suffering from CFS or ME/CFS. Much more...
Hello, I have some questions, and I will be happy if someone has the answers.
Swedish healthcare thinks generally that indication of active / reactivated infection means that IgM is outside the reference in most (all?) infectious diseases.
However, there are researchers and clinicians who...
Last year, it was discovered that CFS patients have impaired activation of AMPK
“What we have been able to identify is that production of AMPK is impaired in patients with CFS compared to those without.This is an important finding because there are drugs that are currently already available that...
Is there anyone who have tried Dimexanol? It contains the "mud" Morelyte which encapsulates the bacteria, toxins and other crap in the intestine. It settles as a barrier against intestinal mucosa. It must logically be good against leaky gut then? Or am I wrong?
There are at the pharmacy for...
I have put together what I found for variances, based in part of studies and partly by extensive contacts with many suffering from ME/CFS. Feel free to fill in the comment field. Please indicate the source if you consider that the majority has just this deviation. I'll update later.
NK cells
We...
Please, sign the petition where I want Sweden to contribute to international research for ME / CFS - it will also help you! Sweden has money and Sweden has about 40 000 people suffering from ME / CFS. I hope that Sweden can contribute to the Open Medicine Foundation and Lipkin / Hornig study. I...
Imagine you suffer from a disease that makes you have flu symptoms, every day, year in and year out. You are going toup to the health center and a doctor sitting and looking in another direction. He/she does not understand why you are sick. You have received a "slush diagnosis". They have decide...
Theodore Henderson is a psychologist who practices in Denver. He has treated over 200 adults and over 30 adolescents with ME/CFS (patients are diagnosed after Fukuda criteria). He has not yet published the study with the adults. The results of the study with the young people reflects everything...
To the left you can see my wife Claudia when we were going to a dinner last summer. To the right is the day after.
My name is Mats, and I am from Sweden. My wife Claudia got sick in meningitis autumn 2008. She became really bad and was in intensive care for eight days. Claudia didn´t recover...