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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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margib
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Tiger Woods & I may have one thing in common: we have both had our blood spun (I believe thats the past tense of blood spinning). Another branch of Neural Therapy is having blood (as opposed to platelets, like Tiger allegedly has) extracted, mixed with homeopathics, & injected back into your...
Hit me! Cue Rick Rubin & his bug, puffy beard in a black & white grainy film. He waves my test results around. The music screeches to a stop.
Metametrix Urinalysis/blood work just came back. These are not exciting results, but they're results, nonetheless.
Dr. Anonymous recommended...
The thing about this illness that I so often forget, because I'm focused on the fatigue part: it's chronic. The way migraines, Diabetes, or back pain are chronic. So, to cope with any orthostatic intolerance (OI) or generally debilitating feelings of fog-head & paralysis, I watch TV. My need...
Dr. John Lathrop has a phD from Harvard in astrophysics. He has been teaching me about the stars for as long as I can remember. He is my father.
In their early days of dating, my mom once introduced him as an ivy league astrologer, & he didn't correct her (she was merely nervous, not...
In 1993, my neighbor said I was the sickest person she'd ever seen live to tell about it. Most people have a flu story, a sick story, a food poisoning story, a once-or-twice-in a lifetime experience that is over in 3 - 7 business days. Mine has sort of never ended. Although I believe I was...
Sometimes I think I'm okay, I'm going to make it, this isn't so bad, & sometimes I think, I'm only trying not to die every day, & this might be the best it will ever be. It is hard to be the one on the list that no one knows what to do with, even the professionals & the experts. This is one of...
Why I like birth? Everything to do with birth? Because it feels like a do-over. Every birth I've been to has been special, each one different, & I've felt lucky & honored to be there. Like witnessing a re-do of my own life. At a birth, right before the baby is born, time stands still, & you...
My level of functioning today.
More importantly, your age.
2: The number of times in an hour you ask me to play.
2: The number of times I say no.
2: The number of words in the phrase, I'm sorry.
I'm trying, but I'm so weak. I am used to being weak sometimes. But you are not used...
My food sensitivities are finally catching up to me. A few weeks ago, I felt my throat close up after eating pumpkin seeds. I know that food category can be a little weird for people, so I didn't think much of it, until last night, when my throat started to close after eating a spirulina bar...
I'm trying to catch any anatomy of the Year of the Tiger. I want 2010 to be here, to wipe this year off the map. Eeny meeny miney mo is also how, you may have observed, dear readers, I seem to choose my supplements. Today I did one dose of Asian goo. I finally realized where I recognized the...
I was at a 3 when I got up today, sooo exhausted, & took the Fluconazole, realized I still had an empty stomach so gave the lactoferrin a whirl (it does have , after all), then felt brave enough to try the Asian goo, which was my one hit of sugar for the day. I also felt much better after skin...
...that B-12 is too much to take b/c of the mercury/metals, that I should be taking MSM to clear it...what next? I'm so confused!
I think I was again sidelined by an encounter with some delicious rice/corn chips; if I don't get a hold of DN soon, I will totally lose my mojo to become a...
Also, Dude, Chronic Fatigue is not the preferred nomenclature. Myalgic Encephalomyelitis, please.
I have drawn a line in the sand when it comes to coffee & milk in the mornings. For this, I may not budge on. It is my Shomer Shabbos. Besides, both goat & rice milk taste pukey & hemp milk...
I really want to go to Ohio. I know I'm not even on the long list, but I need help. I know I listed my functioning as a 6, but it doesn't reflect that I'm functional about 1/3 of the day about 1/3 of the week.
Yesterday, I was a 5; not too tired, but brain-fogged. Then I ate a delicious...
...right out of my body. Stop stirring around my brain & reabsorbing & poisoning me. I cannot get you out!
Yesterday, I will call a 6, though toward the end of the day, immense brain fog & some serious fatigue kicked in. Compared to how scary last weekend was & how dark my mood has been...