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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Lisa
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(As originally posted at Sundog Tales)
Imagine living 20 minutes away from here:
<img alt="Ho'okipa Beach Park, Maui" src="http://img215.imageshack.us/img215/8498/bytaminatoratflickr.jpg" title="Ho'okipa Beach Park by taminator at flickr" width="500" height="328" />
Ho'okipa Beach Park...
(as originally posted at Sundog Tales
Its another sunny day here in the Pacific Northwest. Starting into the best time of year not too cold, not too many bugs, and a few more sunny days. It only lasts about a month, usually most of April though this year it is late.
Life has been moving...
(originally posted at Sundog Tales)
What is Healing? I have pondered this question many times.
Recently, I have begun to see signs of deep physical healing at long last, but why? What has changed?
I now sleep 12-15 hours a day. Thats a 10-12 hour night and one or two naps during the...
(as originally published at Sundog Tales)
With the holidays upon us, seemed a good time to share our recipe for Paleo Pancakes. These are a bit different than many similar recipes online as we designed them to be high density protein with a good dose of veggies - basically, a balanced paleo...
(originally posted at Sundog Tales)
An early snowstorm and cold front brought some amazing weather this week. This time I decided to capture it on film!
Last week Planet Thrive <a href="http://planetthrive.com/2010/11/mcs-survivalist-guide-part-1/">published an article </a>I wrote on how...
(Originally posted at Sundog Tales)
I had intended to post back here more frequently, but my health has been up and down, especially the last few weeks.
We have gotten our winter preparations well under way. October saw us finish changing out the leaky tarps over our tent - a project...
(originally posted at Sundog Tales)
As the title implies, today is the one year anniversary of this blog. I've spent the last few days trying to decide what type of post to write for marking such a momentous occasion. I could write a review of the changes, or lack there of in many cases, seen...
Quick news flash! Dramatic happenings going on in camp today.
A short while ago Jeremy was out washing a dish when he spotted a mole above ground seeming to scratch an itch on his hind leg.
They are pretty cute up close and it was a very rare treat to get to see one. But something seemed...
as originally posted at Sundog Tales:
It can be useful to minimize wasted time when paying out of pocket for a specialist visit, having to travel for the appointment, or not being well enough to make multiple trips to your physician. Over the years I have learned a few tricks to help us get...
Reposted from Sundog Tales
Yesterday was this year's trip to see our MCS/CFS specialist who's office is about two hours away. (For last year's trip see <a href="http://sundogtales.wordpress.com/2009/10/10/back-from-the-wizard/">Back from the Wizard</a>) The weather couldn't have been better...
My life has been led by far too much fear.
If you had asked me ten years ago while I was still healthy, I would have been very sure that fear played little role in the direction life was taking.
I would have been wrong.
Over the last several months I have been thinking about fear's...
In life we have choices. Choosing gives us power. When we are thrust into a situation in which we have very little choice, it can leave one feeling very powerless. Thus has been my situation been for the many years I've been homeless in this very tent.
Until now.
For years we have tried...
A couple weeks ago I injured my left wrist while slipping on one of our dirt paths around here. They get a lot of loose gravel and debris on them when the weather turns warm and dry after months of rain, all the mud dries leaving stuff loose under foot.
A few re-injuries of the same wrist...
July 1st is a day of remembrance for me. It was this day six years ago when my mother passed away from complications of the same illnesses I now have Chronic Fatigue Syndrome (CFS) and Multiple Chemical Sensitivities (MCS).
She was only 55.
Ivanna Pausmann led a difficult but very...
Nearly another month and still not doing well.
Jeremy is slowly (very slowly) seeing improvements with the twice daily nasal rinsing using oregano oil, salt, baking soda, and water. The glutathione nasal spray is also helping to heal his sinus infection. Its very slow improvement, a little...
Had another phone appointment yesterday with Dr. Buscher our CFS/MCS specialist. Seemed time to consult him since Jeremy and I had tried everything we could think of doing on our own but to no avail.
It didn't take Dr. Buscher long to figure out what is very likely happening to us. This year...
I wrote a letter to a good friend last night and oddly, turns out we both had the same ideal - that the things I said in the letter need to be heard by more than just one person. This is a very candid view of my life right now. Edited only for name, "Late night chat"
Hola! :)
Its about 1...
I had very vivid dreams last night of driving to town and going grocery shopping. For most people this surely would have been a pretty mundane dream and rather boring even. For me, its usually the nearest I come to living normally again because most things like this are beyond me at this time...
I had a nice surprise yesterday. My friend <a href="http://ncubator.ca/blogger/">Jody Smith over at Ncubator</a> passed the Happiness Award on to me. Thanks for the award Jody, I shall see if I can spread some cheer in kind!
Without further ado - on with the show!
The rules for the...
Have I mentioned that I love my doctor?
I had an appointment with Dr. Buscher this morning, by phone because of the great difficulty in personally seeing him. It was time to check-in with him as to our last six months and go over what testing Jeremy and I should have before seeing him in...