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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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KonaRose
- Author KonaRose
- Create date
I am in the 9th year of bedridden with whatever acronym they want to label this as. It totally fits the ME/CFS/SEID list of symptoms, but what the hey, my doctors refuse to accept this as a REAL disease. Rather, then continue to heap psychological labels all over me, which is pushing me farther...