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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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JuliaMaple
- Author JuliaMaple
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- Updated
Hey everyone,
I recently got some results.
A 24-hour blood pressure test was done, and a neuro-psychological series of tests where done.
The 24-hour blood pressure test confirmed what was already seen during the tilt table test, it shows POTS 'and' postural intolerance/hypo-tension or whatever...
Hey there everyone,
I wanted to write a small update.
It has been a while again, and lots has happened in life.
When it comes to the 'medical issues section', not much has happened. Because of the busy month that is December, everything was on hold a bit. And because one of the sons of my...
Today is not a good day.
I feel so tired, so incredibly tired and sleepy. I feel like I cannot wake my body up. I have a cold sore, but do not have a fever. So that's not it.
I have tried to figure out why today is so horrible, I measured my blood pressure and heart rate.
My blood pressure is on...
Hey there everyone,
I wanted to write a short update, but also apologize for not (yet) replying to the comments made under my previous blog post. I have not been well, and do not use the computer as much because I am simply too tired often. I pretty much do nothing at all when its as bad as it...
Hello everyone,
It has been a while.. I stopped visiting Phoenix Rising for a time because other things happened in my life, some complicated turns in life made me too tired to focus on anything else.
The medication was working, I felt better on that part. Not 'great', but slightly stronger in...
Some new things have happened and I wanted to write a bit about it.
The biggest update is that the dose of Fludrocortisone was made a bit higher, instead of two 65.5 mg tablets, its now three.
They are spread through the day, to prevent a late morning crash, so one for the early morning, one for...
Hey there everyone,
A blog entry to write down some updates.
Not much has changed in the past days, I have some difficulties with the sunny warmth outside. The medication that I take for 'pots' do help me, but the effect seems less strong now compared to when I just started.
Still though, it...
Hey there everyone :)
A while ago I registered on this forum,introduced myself in the introduction forum, and quickly found out about myself that I really have this hunger for sharing what I experience. I have been feeling so lonely through the years. When I am here, words keep coming and...