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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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GracieJ
- Author GracieJ
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Finally, I was able to get out and take a walk this past week. I have been too weak for it for months, so it felt great. Limit: About half a mile. There is this great park near me with a loop for walkers/runners. Time to go hang out a lot. Maybe I will get my daily two miles back after two...
Here I am on a Sunday afternoon, inside my four walls, trying to be patient with my life. Over the summer, I was able to do a lot more and was in the habit of scanning, writing and scrapbooking on Sunday afternoons. It was fun.
Fall came, and at the same time, I ran out of two crucial...
My life since last March has been a joyful wonderland of new challenges, new people, new experiences, new feelings emotionally and physically as many pieces of ME/CFS melt away. Sometimes it has been an uphill battle, like my first few weeks back at work as a massage therapist, or looking at...
Posting Part I of these musings and thoughts was cathartic. It had not occurred to me that grief was a part of this until I was proofreading. It just seemed to be lifestyle adjustments. I can see, too, that grief is resolving itself into joy. There really is light at the end of the tunnel...
If I could draw better, I would draw a cartoon GracieJ right here, wild-haired, cross-eyed, tongue hanging out in mad frustration, covered with a tangle of electrical cords.
I just have to make fun of myself a little bit today when it comes to tech toys and keeping them recharged. It is a much...
So I think I'm off the roller coaster, still have speed bumps to contend with daily, weekly. BUT it isn't hourly, or every ten or fifteen minutes these days, trying to figure out what is needed, or just crashing or zoning for hours on end. I will never miss those years.
Every piece takes work...
I had this grand plan when I finally logged back onto Phoenix Rising and other sites in May after about nine months that I was going to start blogging regularly, and keep a written record to track my progress. Remitting can be such a one step forward, two steps back process, sometimes two steps...
Last night sleep was a joke again. Went to bed too early... with a truncated circadian rhythm, that is a huge mistake. Awake at 3 am, ready to sleep again at 9 am... just as the alarm is going off to get going for another day.
Off the public transit train, sitting in a restaurant for an hour...