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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Dandelion Discotheque (d'un lit)
- Author sunshine44
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Sometimes,
you have to exist in the space
of not feeling much hope
for a little while...
or a long while.
Getting comfortable in this space
is part of my survival strategy.
If i don't fight it,
then there is nothing to do.
To save.
To push.
To be.
To heal.
Sometimes, i am just broken
with no...
Its a dance party. We need it. The world needs it. Whether you are in bed....or sitting...or standing...
shake it like a polaroid picture phoenix rising!
(Y'all don't want to hear me, you just want to dance)
Transdermal Part 2:
I am going to do some copying and pasting of what i wrote on PR in responses to posts.
There are MANY ways to go about this. I have found through research that approximately 70% is being absorbed into blood stream...varies on what it is, density, evaporation etc. This is...
Happy day of LOVE Phoenix Rising community!
You are SO loved :heart:
Give yourself a big gentle bear hug to remember this today.
This...is probably one of the reasons i began this blog....and i am finally getting around to writing about it. I am not certain how i will section this up but it will be in multiple parts as i've been extensively experimenting in this area. Please remember my situation is severe, i've had very...
Its been an intense new moon for me.
Sharing this in case it brings even a moment of relief for anyone else in need tonight.
Twenty degrees of solitude
Twenty degrees in all
All the dancing kings & wives
Assembled in the hall
Lost is a long & lonely time
Fairy Sybil flying
All along the all...
First, i don't need to explain much why i'm posting an energy recalibration video after my last blog :lol:
Next, i want to tell a magical story about my tulip tree. WE have this giant tulip tree in the front yard. She was hit by a tornado before we moved in 8 years ago. Shes been mangled but...
Many things happening in Sunshine's world these days. Where to start?
Today my medical advocate came over and we went over notes (as i could) for 1 1/2 hours. Then i went into a ptsd episode and dissacociated fairly hard...but i brought myself back...somehow, someway and withing a few hours was...
You can maybe relate. Or maybe not.
Over the past 4 years, most people have fallen out of my life.
Its truly like i went missing in so many ways.
The last time i took my son to boyscouts...gone.
Never seeing those parents i was friends with again.
My daughters mommy and toddler library...
Well, i've been meaning to write this this week and today is fitting since Thich Nhat Hanh transitioned today.
I have felt a bit of the suffering and sadness in the world this week. I am sure many of you can relate. These times we are living in are so epic and take a new level to remain...
Today, is the full wolf moon. It is actually peaking just about to the minute right now (which was not timed, haha). If you are anything like me, you probably feel full (and new) moons to some extent. Many of us are so out of tune with the cycles and rhythms of nature, that we at first think...
Tonight, i am dreaming i am time traveling to 1968 and eating cherry pie, french fries and a peach milkshake at a soda counter. Simple pleasures! :)
I am going to eat the whole world when i can again one sweet day! :cake: :heart:
A few days ago, i laid on my side and my daughter brought a tray with watercolors, paintbrushes and water in bed. It made my heart so happy. I'm easily discombobulated moving my arms around much and in unison but this was manageable for a short time. It was so fun for me and her! First, i folded...
"In the universe, there are things that are known, and things that are unknown, and in between, there are doors." -William Blake
Today i want to talk about the incredible and amazing moringa leaf. It is a tree that i feel is quite possibly ones of natures greatest gifts to humans. It is unbelievably underused as a food. I personally feel if it were a staple item in many societies, it could greatly assist the mineral and...
Join me as we celebrate this beautiful, wild and crazy world this Saturday evening!
Whether you can listen ....or not.....or just close your eyes and choose your own rhythm and imagine all of us at a bonfire in my backyard eating the yummiest food, making smores and dancing and breathing in the...
I am still kinda exploring how i am going to navigate this blog. Knowing me, some weeks i will have many posts then i will probably go a month with nothing. ;) If theres one thing i am good at, its being unpredictable. I should note that sometimes my posts might be sad.....and i am sorry for...
I haven't always been able to listen to music like many of us on this journey.
I remember when i would try to lay there and remember lyrics of songs and could only string a few words together in my head and hardly move my body on the bed for a few seconds....and it would crash me....i would go...
A little history about my story.
Its kinda atrocious at times.
The newspaper catches a glimpse of this.
I have mostly been without healthcare beyond
ambulance trips since 2018.
My patient advocate at the time was so frustrated
by my case and lack of help or concern after 3 months
of trying every...
My name is Sunshine. I am 40 years old. I am married and have 2 children. I have been a part of this strange club since 2008 but things took a steep decline in 2016. I entered this universe some of you are familiar with. By 2018, i was fully bedridden with a wheelchair to use the potty and could...