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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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creekfeet

creekfeet
2 min read
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User Blogs
If I could tell the world just five facts about Myalgic Encephalomyelitis (ME/cfs) I might choose these. ME/CFS causes more functional impairment than diabetes, heart failure or kidney disease. creates a level of disability comparable to MS, chemotherapy or the final stages of AIDS...
creekfeet
4 min read
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763
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5
User Blogs
There are better days. Between my last post and this one, I had a ruptured ovarian cyst that nearly made me pass out, put me on Darvocet and laid me flat for most of three days. Not better days. Today, amazingly, I had some energy to spend. I got up at 4 am, prepared and served 3...
creekfeet
4 min read
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935
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7
User Blogs
(repeating my blogspot blog here again... mostly just typing out of loneliness really, and thinking maybe I can try to describe for others who don't have this illness, what it's like to live with) Aching all over, horrible feeling of pressure in head, chest pain. Want to be lying down but too...
creekfeet
1 min read
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917
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6
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Katie! I was wondering where, and how, you were. I'm so happy you had a lovely holiday and a good decision made. Too bad life had to load on the crap to welcome you home afterward. I hope you can recapture some of the Venice glow.
creekfeet
1 min read
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492
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1
User Blogs
Check out the Sock It To ME thread in the project pages. It's a delightful and promising awareness project thought up by one of our own, Talkingfox. Several others have added input and yours is invited, right HERE in our forums . The project isn't ready to be revealed to the general public...
Reflecting on the stages of grief, and proposing a 9th (or so) stage: Action. From my blog which I started before arriving here. Various models assign 5 to 7 stages to the grieving process. They say we work through grief in stages from denial to acceptance. I'd like to propose that a...
creekfeet
1 min read
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442
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1
User Blogs
I actually have a little bitty blog already, from before I found this place, and here's the link: It's Only ME, It's Not My Mind.

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creekfeet
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