• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Coping and Waiting

Blog details

A journal of sorts of my life as a carer and partner to someone with severe ME. If I don't get these words out I'm going to scream, and their noise cancelling earplugs won't help much with that, so instead I will scream here. A diary felt too lonely.
Will refer to myself as Spinach, my partner as M, we both use they/them pronouns, are in our late twenties, and from the UK.