CedarHome

The flare has calmed down and I have a LOT more energy, which is :balloons::balloons::balloons:very exciting :balloons::balloons::balloons: I have even had a couple times when I could not stop dancing in the kitchen (yes this is after 9 months of being nearly couch/ house bound)...

Was doing so well and then - - slam into Wall of Flare This time it feels very clearly inflammatory- full body Day 3 of full on sleeping/ crash I spend any energy reading up on low histamine diets Although it is quite beyond me how to combine low-histamine eating with SIBO preventative...

As per Dr. Kaufman "active chronic Lyme" + MCAS + SIBO... Bartonella is possible also. A mere 9 months after big crash/ acute episode that I am still trying to recover from I am so grateful to Phoenix Rising and that I found this site early on. If I were waiting for the local medical...

Protocol: B12 injection 3x / week (10 mg I think) and methylfolate. Started out 2 mg, then went to 3, now at 4. Week 1 was great! Well, that's what I remember, but my actual notes say Dose 1: Increased light & sound sensitivity, herx like reaction, malaise Lymph nodes started talking 2...

LDN, LDN, how I love thee, LDN. Started 1.5 mg 3 days ago. Results so far: --Better sleep! It really cut down the "wake every 90 minutes" business which was getting OLD. --Mild illness. Fatigue, need to rest, lack of concentration. This after a period of (relatively) high functionality...

I kept thinking- is this insane? (yes) But decided that if I only had 6 weeks/months etc to live I would STILL want to see the eclipse if it was at all possible. I've been slowly getting better so decided to risk it. Of course we didn't make lodging reservations 3 years ago. Backcountry...

23 & Me results courtesy Genetic Genie: MTHFR C677T +/+ (I understand this is the party bus) MTR A2756 +/+ MAO-A R297R +/+ (I know, I only have the good ones!) VDR Taq +/+ VDR Bsm +/+ CBS C699T +/- (not sure if this is meaningful) So, while waiting for Nutrevel results, I am combing through...

So, last week was my husband's birthday. We haven't been out to eat since I got sick in February. Against my better judgment I made reservations at his favorite (local family owned Italian) restaurant. Early at least.... 5:30 pm...- that should help, right? We were almost the only people in...

Also, CD 57 came in at 71/uL which naturopath thought was low and could be Lyme indicative.

So, since Phoenix Rising is now my community, and since I spend hours here every day learning- wanted to share my update. 4+ months into current "flare" and I'm much better than I was, knock on nearest wood Mostly housebound Able to work 2-3 hrs per day from home, several days/week Praying...