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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Bonnie
- Author Bonnie
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Are there checklists that determine the severity of our illness? If someone has feeding tube, is that severe? Also, this is very grim and I apologize to all, but are there predicted life expectancies? I just really need a feel for what I'm facing. I know God knows when and that's fine, but...
Anybody else out there that has reached the point of tube feedings? Kinda bummed. Wondering if this puts me in the severe category . Just scared and looking for help from those who have reached this part of our journey.