• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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ArgyrosfeniX

Blog entries Blog details

Blog details

Living with ME/CFS since the age of 16 1/2 months (1974), but diagnosed at age 17 years (1990). Was persistent enough to get three Associates Degrees and get married through it all. Working hard to keep going for as long as I can before becoming bedridden. Current treatment plan is to use Valcyte for 2 years starting January 13th, 2012, then possibly switch to Valtrex for an indefinite period. New treatment plan is to restart Valcyte - hoping for March 11th, 2019. :)

"Here I am trying to live, or rather, I am trying to teach the death within me how to live."
~ Jean Cocteau