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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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1gooddog
- Author 1gooddog
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I am running out of room for knots.
I have a history or R & R type of disease. CFS, then MS, then the obvious dx of depression and anxiety. Which we won't even discuss, cause I am certain the latter is the dx everyone has received. CFS and MS were thrown out the window in favor of the...
This has been one of my primary problems. The past few months it has become debilitating.
I haven't seen any threads.
Can anyone offer advice. I am becoming desperate.
So I have done some research, directed in part by Forums information.
Mast Cell Activitation Syndrome
I have had such a bad week. Dust allergies have been over active. This past week my heart has really been struggling, I have trouble breathing, and my nasal breathing has been an issue for...
......has been my motto for almost 30 years.
We are all a bit different in how much we can do, physically. Even on a bad bed-ridden day, if I can stand and walk for even a few minutes, I do. I drag myself to the deck to soak up some Vit D.
Some mornings are better than others, and then I try...
This was used before the advent of antibiotics, and big Parma dollars took control of healthcare. I have seen it used on a close family member with excellent results.
Has anyone tried it?
I was researching multi chemical sensitivities. No surprise the med community does not accept inorganic chemicals can cause illness. Good Grief! We ARE organic!
I was visiting Johns Hopkins site reading up on their view of CFS. Of course they are recommending some medications, but most...
After suffering with the mostly unknown for many years without a proper dx, I focused on managing symptoms. Which I still do. At my age I am not interested in becoming a guinea pig but I applaud those who do, in the most genuine way. If I were younger . . . . . . . . . . .
I began to...