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Blog entries by Tom Kindlon
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Dr Weir's 5 free Irish ME/CFS talks in Cork/Dublin/Galway/Limerick/Sligo, May 2023
Tom Kindlon
Feb 14, 2023
User Blogs
Info on Dr Weir's 5 free Irish ME/CFS talks in Cork/Dublin/Galway/Limerick/Sligo, May 2023, organised by the Irish ME/CFS Association
Views
699
Comments
3
Updated
Feb 14, 2023
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I’m very grateful for the online chronic illness community and feel it can and does make a positive contribution
Tom Kindlon
Sep 27, 2022
User Blogs
Title: I’m very grateful for the online chronic illness community and feel it can and does make a positive contribution --- I was recently asked...
Views
690
Comments
5
Updated
Sep 27, 2022
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How many Long COVID patients develop ME/CFS? by Art Mirin (August 20, 2022)
Tom Kindlon
Aug 22, 2022
User Blogs
Art has kindly given me permission to share this How many Long COVID patients develop ME/CFS? Art Mirin, 8/20/22 Overview: Of the 5 studies of...
Views
606
Comments
1
Updated
Aug 22, 2022
(Ireland) Webinar: "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome & ME/CFS"
Tom Kindlon
Mar 18, 2022
User Blogs
Educational event for GPs: "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS" Time &...
Views
1K
Updated
Mar 18, 2022
(Ireland) Webinar: "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS"
Tom Kindlon
Jan 27, 2021
User Blogs
Educational event for GPs: "Key messages for Primary Care on the Diagnosis and Management of Post-Viral Fatigue Syndrome and ME/CFS" Time & date...
Views
6K
Updated
Jan 27, 2021
Link to recording of and slides for Dr Ros Vallings' recent talk and Q&A
Tom Kindlon
Dec 11, 2020
User Blogs
From: Irish ME Trust & Irish ME/CFS Association Hi Everyone, The YouTube link below relates to the Online talk and Q&A with Dr Ros Vallings on...
Views
699
Updated
Dec 11, 2020
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Some alternative ME/CFS forums and other resources with the yahoogroups closing
Tom Kindlon
Dec 5, 2020
User Blogs
I'm posting this to some yahoogroups tonight. In case it is of interest to anyone, I thought I would share it here. Tom --- With yahoogroups...
Views
741
Comments
1
Updated
Dec 5, 2020
The "little man/woman" can make a difference
Tom Kindlon
Nov 11, 2020
User Blogs
Ten years ago, I believe I was the first to highlight in a peer-reviewed ME/CFS publication that there was no formal system to report adverse...
Views
4K
Comments
1
Updated
Nov 11, 2020
Dr Weir's 4 May Irish M.E. talks in Cork/Dublin/Galway/Limerick
Tom Kindlon
Feb 23, 2020
User Blogs
This has now been cancelled: see message below The Irish ME/CFS Association is pleased to announce that it has arranged for Dr William Weir, a...
Views
2K
Comments
2
Updated
Feb 23, 2020
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Limerick event on Sat, Feb 15 (for all with a particular focus on children/young people & parents)
Tom Kindlon
Feb 1, 2020
User Blogs
(Ireland) Limerick event on Sat, February 15 (for all with a particular focus on children/young people & parents) Sarah Warde, coordinator of...
Views
922
Updated
Feb 1, 2020
UK medical research charities spend a broadly similar amount to the taxpayer-funded National Institute for Health Research & Medical Research Council
Tom Kindlon
Oct 7, 2019
User Blogs
There is a popular tweet going around by somebody with ME in the UK complaining that biomedical research shouldn't have to be funded/crowd-funded...
Views
2K
Comments
1
Updated
Oct 7, 2019
Should donating to ME/CFS research be left to millionaire sufferers and ex-sufferers? I'm not convinced
Tom Kindlon
Aug 18, 2019
User Blogs
I think it is important that there is private money raised for research to speed up research progress. For example, researchers will have a better...
Views
2K
Comments
2
Updated
Aug 18, 2019
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It'd be great if research funds could be set up in more countries, either as part of existing groups, stand-alone or affiliates of other charities
Tom Kindlon
Aug 5, 2019
User Blogs
It'd be great if ME/CFS research funds could be set up in more countries, either as part of existing groups, stand-alone or affiliates of other...
Views
4K
Comments
13
Updated
Aug 5, 2019
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How I lost 70 lb / 32 kg / 5 st while ill with (severe) ME/CFS
Tom Kindlon
Dec 4, 2018
User Blogs
(This is an updated version of something I wrote in July 2017) I am fortunate to have managed to get my BMI down to a healthy 21.7 by losing 70...
Views
5K
Comments
16
Updated
Dec 4, 2018
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How I lost 48lb / 22kg / 3st 6lb while ill with (severe) ME/CFS
Tom Kindlon
Jul 14, 2017
User Blogs
I am fortunate to have managed to get my BMI under 25 (24.7) by losing 48lb / 22kg / 3st 6lb while ill with severe ME/CFS. (I hope to lose more...
Views
2K
Comments
11
Updated
Jul 14, 2017
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This week is my 28th anniversary of becoming sick (aka "sickaversary") with ME/CFS
Tom Kindlon
Feb 13, 2017
User Blogs
This week is my 28th anniversary of becoming sick (aka "sickaversary") with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome at age 16. I've...
Views
1K
Comments
3
Updated
Feb 13, 2017
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Some reasons why I donate to research into my illness (ME/CFS)
Tom Kindlon
Dec 20, 2016
User Blogs
Some reasons why I donate to research into my illness (ME/CFS) (Following on from a discussion elsewhere, I was prompted to write this) I see...
Views
798
Comments
1
Updated
Dec 20, 2016
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Brief Thoughts on why I'm passionate to get rid of "Chronic Fatigue Syndrome"
Tom Kindlon
Mar 14, 2015
User Blogs
I have been reflecting on reasons why I'm passionate to get rid of Chronic Fatigue Syndrome (CFS) following a Twitter exchange yesterday. I had a...
Views
972
Comments
3
Updated
Mar 14, 2015
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