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Blog entries by TiredSam
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Trip to the charite in Berlin, part 13
TiredSam
Jan 17, 2017
User Blogs
So, after over 2 years of doing the rounds to have everything tested and excluded, learning about pacing, tracking my activities and refining my...
Views
477
Comments
10
Updated
Jan 17, 2017
Trip to the charite in Berlin, part 12
TiredSam
Jan 16, 2017
User Blogs
Here are the treatment recommendations in my letter from the Charite: Recommendations: Vitamin D 1000 E daily in the morning eg Vigantol Zinc...
Views
590
Comments
7
Updated
Jan 16, 2017
Trip to the charite in Berlin, part 11
TiredSam
Oct 2, 2016
User Blogs
There followed a few paragraphs of general information on the causes and treatment of CFS: Prolonged fatigue also often occurs as a result of EBV...
Views
541
Comments
13
Updated
Oct 2, 2016
Trip to the charite in Berlin, part 10
TiredSam
Oct 1, 2016
User Blogs
Before I became ill, I would go to an English-speaking “Stammtisch” (regular meeting in a pub, a very German tradition) once a week. We were a...
Views
346
Comments
7
Updated
Oct 1, 2016
Trip to the charite in Berlin, part 9
TiredSam
Sep 29, 2016
User Blogs
The report was 6 pages long, and started with the following: Diagnoses: Chronic Fatigue Syndrome (CFS) (G93.3) No indication of immunodeficiency...
Views
673
Comments
17
Updated
Sep 29, 2016
Trip to the charite in Berlin, part 8
TiredSam
Sep 27, 2016
User Blogs
And so May turned to June, and June turned to July. The 8-week point came and went, 9 weeks … Finally it was decided that on the Monday of week 10...
Views
336
Comments
7
Updated
Sep 27, 2016
Trip to the charite in Berlin, part 7
TiredSam
May 16, 2016
User Blogs
Although I had delivered the statement “the reason I ask is because of the PACE trial” in my best up-speak, implying questions such as “Have you...
Views
503
Comments
11
Updated
May 16, 2016
Trip to the charite in Berlin, part 6
TiredSam
May 14, 2016
User Blogs
Dr Hanitsch explained to me that he had had to give evidence in court, and there had been an issue about the different ability / fatigue scales...
Views
231
Comments
3
Updated
May 14, 2016
Trip to the charite in Berlin, part 5
TiredSam
May 13, 2016
User Blogs
I was reminded of a passage from Osler’s Web, where Hillary Johnson describes a neurologist talking about the difficulty of diagnosing MS: So I...
Views
334
Comments
8
Updated
May 13, 2016
Trip to the charite in Berlin, part 4
TiredSam
May 11, 2016
User Blogs
Dr Hanitsch said that I was a very atypical CFS patient in two respects: Firstly, my PEM triggers are only physical. I only get symptomatic when...
Views
524
Comments
14
Updated
May 11, 2016
Trip to the charite in Berlin, part 3
TiredSam
May 9, 2016
User Blogs
Dr Hanitsch must have heard me speaking English to my wife, because he greeting me in English and that remained the language of our whole meeting...
Views
270
Comments
4
Updated
May 9, 2016
Trip to the charite in Berlin, part 2
TiredSam
May 8, 2016
User Blogs
Got up at 07:00 on the day of my appointment. Went back to bed at 09:30, got up again at 10:15, so I was as rested as I could be. Walked to the...
Views
307
Comments
7
Updated
May 8, 2016
Trip to the charite in Berlin, part 1
TiredSam
May 7, 2016
User Blogs
After 2,5 years of ME and 9 months of waiting for my appointment, I have finally been to the Institute for Medical Immunology at the Charite...
Views
308
Comments
6
Updated
May 7, 2016
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