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Blog entries by TiredSam

So, after over 2 years of doing the rounds to have everything tested and excluded, learning about pacing, tracking my activities and refining my...
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402
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10
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Here are the treatment recommendations in my letter from the Charite: Recommendations: Vitamin D 1000 E daily in the morning eg Vigantol Zinc...
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527
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7
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There followed a few paragraphs of general information on the causes and treatment of CFS: Prolonged fatigue also often occurs as a result of EBV...
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431
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Before I became ill, I would go to an English-speaking “Stammtisch” (regular meeting in a pub, a very German tradition) once a week. We were a...
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295
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The report was 6 pages long, and started with the following: Diagnoses: Chronic Fatigue Syndrome (CFS) (G93.3) No indication of immunodeficiency...
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561
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And so May turned to June, and June turned to July. The 8-week point came and went, 9 weeks … Finally it was decided that on the Monday of week 10...
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284
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Although I had delivered the statement “the reason I ask is because of the PACE trial” in my best up-speak, implying questions such as “Have you...
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408
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Dr Hanitsch explained to me that he had had to give evidence in court, and there had been an issue about the different ability / fatigue scales...
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203
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I was reminded of a passage from Osler’s Web, where Hillary Johnson describes a neurologist talking about the difficulty of diagnosing MS: So I...
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294
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Dr Hanitsch said that I was a very atypical CFS patient in two respects: Firstly, my PEM triggers are only physical. I only get symptomatic when...
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431
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14
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Dr Hanitsch must have heard me speaking English to my wife, because he greeting me in English and that remained the language of our whole meeting...
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239
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Got up at 07:00 on the day of my appointment. Went back to bed at 09:30, got up again at 10:15, so I was as rested as I could be. Walked to the...
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258
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After 2,5 years of ME and 9 months of waiting for my appointment, I have finally been to the Institute for Medical Immunology at the Charite...
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265
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